Went to see my rheumatologist today. He says that he wants me to stay on Warfarin as, although a clot can not be seen on a scan, when I am off warfarin or my INR goes below 2 then my speech & colour vision goes. He suggests trying a lower INR of 3. So I am taking the lowest dose that is therapeutic.
I am so relieved.
He also wants me to self test.
Can I ask which self testing machine you use? He said to ask my Dr if they can order it at the GP rate and then me pay them. Has anyone else done this? My GP mentioned self testing ages ago and said she would approve all this and can get the testing sticks on prescription for me so at least that hurdle is already dealt with.
An update on the blood and protein in my water. Had a cystoscopy last week - bladder is fine. Having a CT scan on my kidney next week. They say it is not the warfarin as I have had it on warfarin and off. They also reckon it is not part of the APS. The consultant said they may never find the cause but a scan will rule things out if nothing else.
Thanks for reading.