Appt with the prof: saw Dr. D,Cruz... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Appt with the prof

donnabrain profile image
3 Replies

saw Dr. D,Cruz yesterday who re-instated my diagnosis, but said I don,t need to be seen again, feel a bit high and dry,also asked for something for fatigue (was wanting to try plaquenil but couldnt think of the name of it at the appt ) and he said there is nothing for fatigue. At a previous appt he said he was thinking of trying me on it, but at the follow up he had changed his mind, stating that there is no evidence to show that it helps with fatigue, thing is, so many people on here have posted that it does!

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donnabrain
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donnabrain profile image
donnabrain

thank you so much, shall do that.

MaryF profile image
MaryFAdministrator in reply todonnabrain

I would do this, you can always write to his secretary via email to be forwarded to him asking for what you need. I can't see a problem with asking for it. Mary F x

donnabrain profile image
donnabrain

thanks :)

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