DLA and Hughes

[traceylou]

I have been on DLA since I had a stroke in 2011, brain scan showed that I had suffered multiple strokes in the past,

unfortunately I suffer terribly from all the symptoms of APS, today I noticed I have an increased numbness in my right arm and am frightened. I really suffer badly from brain fogs-memory problems and understanding information, I have no support with this...anyway received a new form to fill in, June so I got in touch with a charitable organisation and went on the list for someone to come and fill the form in, luckily I had a copy of the old form. I was horrified he was not interested in my illness even though I said my condition is complex and with all the rest I have with it, he just carried on and scribbled away copying everything, I was nearly in tears. Threw everything in a pile and hurried towards the door, said he had got to go!!!! I was really concerned about the mobility part as some days I cannot walk at all, then sometimes a little better and trying to explain my balance and how I cannot walk in a straight line is a nightmare in itself, any questions of what some things meant he would just shrug and carry on scribbling.

My award runs out in October, so I need to get it done and in.. The form well nobody could read it!!! It was awful cannot believe it. Rang DWP asked for another form, still have not got it, now in real trouble aaahh! ps sorry for the rant, any clues?

[lynzy]

Hi

You could as your gp to write a statement about your health problems for you, and include it with the claim form, if they are cooperative. You may be charged for this service though. If you do get this then have it photocopied so you have your own to keep as well.

[traceylou]

Hi I have done this.its just the awful form the whole thing I have difficulty writing and wording, the whole thing scares me. Tx

[traceylou]

I told the DWP that the person was only interested in what I had written before and that it was scibbled and I could not read it I rang last wednesday. then this morning the lady at dwp promised to post another one 1st class.

[Cherrydi]

I really feel for you as I am very much the same as you with APS a lot of brain damage from it, last MRI few weeks ago, very giddy. Never feel totally awake, like I am in a semi anesthetic, if that is what you call brain fog, pins and needles in hands legs and roof of my mouth and lips, it is awful, so you really do have my sympathy, I also understand about the DLA and forms, have had mine re-looked at, had a medical, and now appealing for 2nd - 3rd time and now it is going to tribunal.... All the very best and DON'T give up, we are genuine and really do suffer from this, so keep fighting, we are all here to support you X