I have been on DLA since I had a stroke in 2011, brain scan showed that I had suffered multiple strokes in the past,
unfortunately I suffer terribly from all the symptoms of APS, today I noticed I have an increased numbness in my right arm and am frightened. I really suffer badly from brain fogs-memory problems and understanding information, I have no support with this...anyway received a new form to fill in, June so I got in touch with a charitable organisation and went on the list for someone to come and fill the form in, luckily I had a copy of the old form. I was horrified he was not interested in my illness even though I said my condition is complex and with all the rest I have with it, he just carried on and scribbled away copying everything, I was nearly in tears. Threw everything in a pile and hurried towards the door, said he had got to go!!!! I was really concerned about the mobility part as some days I cannot walk at all, then sometimes a little better and trying to explain my balance and how I cannot walk in a straight line is a nightmare in itself, any questions of what some things meant he would just shrug and carry on scribbling.
My award runs out in October, so I need to get it done and in.. The form well nobody could read it!!! It was awful cannot believe it. Rang DWP asked for another form, still have not got it, now in real trouble aaahh! ps sorry for the rant, any clues?