So I went to the GP who did a heart trace as I was getting chest pain as well as the stroke like symptoms. They sent me to A&E. Chest x ray fine, bloods ok - though my veins have collapsed due to APS and so I am covered in bruises from many blood test attempts. I had also passed a clot this morning - kidneys?? CT Brain scan shows changes which could be artefacts but I now have to have an MRI to be sure.
What worries me is that the consultant said if I was his patient I would be on aspirin. I said I was on aspirin prior to diagnosis and still had significant episodes losing speech, reading, writing, memory etc. He said he would give clopidogrel if there was evidence of stroke but not warfarin.
I have to see him after the MRI - just hoping I stay on warfarin which has helped enormously. I think today's "blip" was because I was told to take no warfarin on Monday. My INR has gone from 5.4 on Monday to 3.1 today - even taking into account different equipment etc this is still a big change in just two days surely?
If told to stop warfarin I will just see the consultant who put me on it in the first place and I have saved the £200 or so needed to see Professor Hughes if he will see me if I really really need to.
So fed up of the fight required to get treated for APS even with a diagnosis. I have had 20 years of this and I am weary. So fed up of living with this syndrome.