I have just had first set of positive LA results and waiting for second testing to confirm APS diagnosis.
Have had a stroke and have most of the seemingly 'classic' APS symptoms, so hopefully an APS diagnosis will be the start of the solution.
However, I have a couple of symptoms that don't seem to fit in and was wondering if they are usual with APS.
I get raised bumps on my hands - almost like goosebumps or hives, but they stay for weeks and bleed. Might just be allergic reaction?
Am very grateful to this website, haven't even heard of APS before diagnosis!
Also, I am being diagnosed at St Barts Neurology unit and they've been very very good. Haven't seen much feedback about them, but the lady I'm seeing is quite knowledgable on APS and has been very helpful.
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Frhd
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Thank you! I think I'm just at the old part of St Barts, it's a pretty small site but I tend to go to the outpatients wing or MRI scanning wing.
I was sent the initially as my peripheral vision has deteriorated and I get bad migraines (though aren't all migraines bad?!) and they thought it might have been a tumour, luckily wasn't, but that scan led to more scans and they found stroke lesions.
I've been told it will be Warfarin when second tests come back. Waiting is now the hard bit!
Regarding your rash, I had a rash on my hands that were raised bumps, very sore to the touch. They did not bleed but the dermatologist biopsied one. They weren't 100% certain with the diagnosis. I'll see if I can find the diagnosis in my files when I get home. They showed up when my body was under extreme physical stress (complications from a kidney biopsy: I had a bleed that developed a large hematoma that pressed on my nerves and my leg went numb, kidneys weren't functioning well, and had polychondritis on top of all that too).
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