Been away from site for a few week - navigation really changed! After lots of support from this site, I got a consultation with heomotologist. She was dismissive of my symptoms saying they were stress not APS. At the same time my mums doctor went to a seminar by Dr.Hughes, and realised she wasn't getting the right support.
My husband and I agreed to take about 6 months activity working on stress reduction before trying anything else.
My mother has had pericarditous for a long time now, she is also extremely stressed. it will be end of August before all her results come in and she sees a specialist and she has been told not to fly.
We have therefore decided on a de-stress plan. Together with my dad, we will take a road trip in camper through France and Italy, then meet my husband for a couple of relaxing weeks in Greece. (Where I live, so we understand health system there)
So, to my question - I've arrived in UK to find my mum much tireder than I had expected, she has trouble getting her words out and is frustrated at lack of energy. She also seems quite swollen- especially legs/ankles. Her doctor approved our plan, but it cuts me up she seems too weak to enjoy it.
Has anyone else out there had pericarditous and can recommended anything to take the edge of symptoms? Even a slight help would make big psychological difference.
thanks for reading