Does anybody have B12 deficiciency in... - Hughes Syndrome A...

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Does anybody have B12 deficiciency in conection with APS???

traceylou profile image
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traceylou
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Dagen profile image
Dagen

I do, and I think it makes the fatigue even harder to handle and no amount of vitamin supplement I have tried has actually helped me. I have tried very high doses of sublingual b12's from GNC but that didn't seem to do much but give me false hope for a few days thinking it may be the fix I've always needed but sadly it wasn't:-(

anniesensi profile image
anniesensi

Hi Tracey,

Yes, I do. B12 deficiency can be pernicious anaemia - an auto immune disease. I take folic acid every day and a b12 injection in the tummy every 2 months. You know when it's due!

Dagen profile image
Dagen in reply to anniesensi

Curious to how much energy you got from the B-12 injections?

Elfie1 profile image
Elfie1

Hi , I take a B complex daily because I'm a strict vegetarian,but how do you know if you are deficient. It would be good to know if I'm actually absorbing it, or just wasting my money. Regards Elfie

stillwaiting profile image
stillwaiting

When all this started years and years ago - I too was B12 deficient and received booster injections for a while. Then I was told I didn't need them any more.

Lynn.

Coppernob profile image
Coppernob

I did answer this earlier - but maybe I forgto to press Submit, duh!

I do daily B12 injections, and take folic acid (5mg) twice a week. I find it helps particularly with neurological things like pins and needles, balance, mental clarity, etc. And I notice very quickly if I forget a jab.

I think we're all likely to be B12-deficient and indeed deficient in most nutrients because sticky blood doesn't help stuff get around body effectively and be well absorbed.

Dove1 profile image
Dove1

I am relatively new to APS, I was only diagnosed a few months ago. I am anemic, but I thought that this was due to blood loss and blood transfusion I had 3 weeks ago. I have been vegan since just before I was diagnosed, and B12 can be lacking in vegan diets. I am concerned now that I may be deficient. I am finding all this very scary still. I am trying to look after myself, and generally my diet is full of nutrients, but now I am wondering if I should take some kind of supplement? I am already taking 2 different types of iron tablets.

traceylou profile image
traceylou

Thanks to everyone who has answered, you have all clarified why I have increased pins and needles and swellings and extra fatigue... thank so much you are all great Tx

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