Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,360 members • 10,549 posts

All posts for March 2013

Conception difficulties?

Has anyone had problems with getting pregnant. It takes years for me to get pregnant and I also have had 3 miscarriages. Can't seem to get anyone to consider...

Has anyone had problems with getting pregnant. It takes years for me to get preg...

NBtired

•11 years ago

5 Replies

Pain Pain Go Away.....please

Its been 4 months now and still no closer in finding out what the pain is. Ive had ultra-sound scan and no gallstones and kidneys,liver,stomach all look ok....

Its been 4 months now and still no closer in finding out what the pain is. Ive h...

sharonap

•11 years ago

8 Replies

Has anyone found that their Symptom of APS were improved by taking Prednisalone? Thank you for any input on this.

Everdean

•11 years ago

11 Replies

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Clopidogrel and Warfarin

Is anyone else with APS taking both following a stroke? Warfarin Clinic said it was ok to continue with Clopidogrel until INR got to over 2. It just went to...

Is anyone else with APS taking both following a stroke? Warfarin Clinic said it ...

Elaine77c

•11 years ago

3 Replies

has anyone else had pins and needles , painfull arms and hands and tremors after being taken off warfarin , having been on it for 7 years

dutchess

•11 years ago

11 Replies

Do I need more than aspirin for flight to Cyprus? Advice greatly received

After 3 miscarriages I was diagnosed with sticky blood and put on 75mg aspirin daily. I'm unsure if a 4.5 hour flight to Cyprus will require me to take more...

After 3 miscarriages I was diagnosed with sticky blood and put on 75mg aspirin d...

HWickers

•11 years ago

4 Replies

Enlarged spleen connected to APS?

Hello,I have APS and Factor V leiden . At a recent sonogram appt.for kidney stones the technician commented I had a bit of a large spleen at 15.6cm. She asked...

Hello,I have APS and Factor V leiden . At a recent sonogram appt.for kidney ston...

Sketcher1980

•11 years ago

3 Replies

Pregnancy number 6

In the last 3.5 years, this will be my 6th pregnancy with 5 ending in miscarriage up to and before 12 weeks gestation. I'm excited, terrified, nervous and in...

In the last 3.5 years, this will be my 6th pregnancy with 5 ending in miscarriag...

Maybells

•11 years ago

12 Replies

body hurts

2 nd day off wafarin- don't start enox till sunday - swimming and work out took it's toll on me today- was suppost to start with my new therapist / trainer...

2 nd day off wafarin- don't start enox till sunday - swimming and work out took ...

jetjetjet

•11 years ago

17 Replies

What is ra

freyas

•11 years ago

7 Replies

my irn level has gone from 1 8 to 3 3 how can this happen

thomas70

•11 years ago

2 Replies

Does anyone have SI inflamed joints? Could it be autoimmune related? I'm in so much pain.

jean48

•11 years ago

1 Reply

Has anyone had surgery on a femoral artery clot? I'm newly diagnosed and confused after 2 recent stillbirthsx

Hi all. I am newly diagnosed with Hughes Syndrome and am so confused about so many things. I will write properly very soon when I'm on the laptop but in a...

Hi all. I am newly diagnosed with Hughes Syndrome and am so confused about so ma...

Emmyloulaa

•11 years ago

7 Replies

Does anyone know if taking Warafin has something to do with slurred speech & night sweats?

Tinkyb

•11 years ago

7 Replies

GP who does not agree with Prof Hughes.

My DS has seen the Prof and has weak positive test. Severe almost daily Migraine and extreme fatigue the biggest concern. The Prof wants a 2 week trial of...

My DS has seen the Prof and has weak positive test. Severe almost daily Migraine...

Jade

•11 years ago

18 Replies

Could anyone please give me some advice on hughes syndrome and the link with MS?

Hi Everyone. For the past three weeks i have been falling into things, having tremors, numbness and pins and needles in my arms and feet, headaches that...

Hi Everyone. For the past three weeks i have been falling into things, having tr...

charlie1234

•11 years ago

7 Replies

Hi there I was just wondering if anyone else had trouble with Drs that don't know what Hughes Syndrom is?

Jaide_selby

•11 years ago

7 Replies

Do dietary vitamin k levels matter for someone on clopidogrel?

Having seen references to people on warfarin not being able to eat veggies etc high in vitamin k, it's got me a bit concerned. I'm on a special elimination...

Having seen references to people on warfarin not being able to eat veggies etc h...

Paleosooze

•11 years ago

5 Replies

Anxiety.

Im going thru so much anxiety due to an unbelievable amount of stress. The husband has been out of work a month and we are behind on bills, my daughter is...

Im going thru so much anxiety due to an unbelievable amount of stress. The husba...

lovemyheart

•11 years ago

22 Replies

clotting problems during all pregnancies/trouble now 10 years later

Hi! My name is Kimberly. I apologize in advance for my long post. I have been sick for a long time now. For the past two years I have had horrible vertigo....

Hi! My name is Kimberly. I apologize in advance for my long post. I have been...

Hidden

•11 years ago

6 Replies

Could this be Hughes?

I wondered if I could ask advice from people ‘in the know’ for their opinion before I go to my GP and ask for a test for Hughes out of the blue. I have...

I wondered if I could ask advice from people ‘in the know’ for their opinion bef...

PepperT

•11 years ago

4 Replies

Anyone else take Mepacrine?

I was put on Mepacrine by the Prof in 2002 because allergic to Plaquenil. I have horrid black marks on my nails and what look like bruises on my legs which...

I was put on Mepacrine by the Prof in 2002 because allergic to Plaquenil. I hav...

panda60

•11 years ago

1 Reply

Still in meltdown

Thanks to everyone who replied to my message last week, or whenever I posted it! First time I have felt up to posting again.There seems to be no easy answer....

Thanks to everyone who replied to my message last week, or whenever I posted it!...

panda60

•11 years ago

1 Reply

academic article discussing the APS criteria for 2 or 3 miscarriages

Hi there as some of you might know I had a big discussion this week with my gynea who wanted to hold on to the criteria I should have 3 miscarriages before...

Hi there as some of you might know I had a big discussion this week with my g...

Flyingdutchie

•11 years ago

6 Replies

Did u ever do too much where u put yourself out out of commission for a few days. The body pain and muscle fatigue is incredible...

missymelargo

•11 years ago

5 Replies

Coagu-ceck--- strip testing

i have recently been sent to a coumadin clinic for my warfarin testing - of this i am not happy ,but thats the way it is for now anyways - i have had 2 major...

i have recently been sent to a coumadin clinic for my warfarin testing - of this...

jetjetjet

•11 years ago

14 Replies

Back on community after a long while - just a catch, up, a moan, and a hello to all

Hi to you all. Sorry I haven't been in touch for such a long time. It has been a very hard year. I have never seen so much water in my life. In fact speaking...

Hi to you all. Sorry I haven't been in touch for such a long time. It has been a...

Andrewl

•11 years ago

5 Replies

Does anyone else bruises grow?

I have a bruise that statrted out small as big as my thumb now 4 days later its as big as a grapefruit it doesnt hurt but if I rub it I can make it bigger....

I have a bruise that statrted out small as big as my thumb now 4 days later its ...

fredred

•11 years ago

3 Replies

Does anyone know of a nice hotel by the lupus center?

I just made an appointment at the Lupus Center to see one of Professor Graham's team. Does anyone know of a hotel centrally located to the lupus center and the...

I just made an appointment at the Lupus Center to see one of Professor Graham's ...

designer16

•11 years ago

10 Replies

Numbness in the left hand

tasland

•11 years ago

1 Reply

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for March 2013

Conception difficulties?

Pain Pain Go Away.....please

Has anyone found that their Symptom of APS were improved by taking Prednisalone? Thank you for any input on this.

Clopidogrel and Warfarin

has anyone else had pins and needles , painfull arms and hands and tremors after being taken off warfarin , having been on it for 7 years

Do I need more than aspirin for flight to Cyprus? Advice greatly received

Enlarged spleen connected to APS?

Pregnancy number 6

body hurts

What is ra

my irn level has gone from 1 8 to 3 3 how can this happen

Does anyone have SI inflamed joints? Could it be autoimmune related? I'm in so much pain.

Has anyone had surgery on a femoral artery clot? I'm newly diagnosed and confused after 2 recent stillbirthsx

Does anyone know if taking Warafin has something to do with slurred speech & night sweats?

GP who does not agree with Prof Hughes.

Could anyone please give me some advice on hughes syndrome and the link with MS?

Hi there I was just wondering if anyone else had trouble with Drs that don't know what Hughes Syndrom is?

Do dietary vitamin k levels matter for someone on clopidogrel?

Anxiety.

clotting problems during all pregnancies/trouble now 10 years later

Could this be Hughes?

Anyone else take Mepacrine?

Still in meltdown

academic article discussing the APS criteria for 2 or 3 miscarriages

Did u ever do too much where u put yourself out out of commission for a few days. The body pain and muscle fatigue is incredible...

Coagu-ceck--- strip testing

Back on community after a long while - just a catch, up, a moan, and a hello to all

Does anyone else bruises grow?

Does anyone know of a nice hotel by the lupus center?

Numbness in the left hand

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