Hi! My name is Kimberly. I apologize in advance for my long post. I have been sick for a long time now. For the past two years I have had horrible vertigo. ENT's thought it might be Menieres disease. I have cognitive issues like, poor memory and brain fog, Last month I was rushed to the ER with stroke symptoms. They kept me for the weekend but couldn't find anything on my MRI and sent me home. The doctors thought I might have MS but that was ruled out too. I almost always have headaches now. I have been slowly getting better from that but now have a very sharp pain in my lower right ribcage that has hung around for about 2 weeks. I have had four pregnancies. I lost my first two babies. By my fourth pregnancy the found out my blood was over clotting and I had to take Heparin injections twice a day.
1. 1996-My first pregnancy started out fine and at my 20 week ultrasound they found that all my amniotic fluid was gone & my son had IUGR. They told me at that point that my pregnancy wasn't salvageable and I should expect to deliver him dead. As the week progressed they found out I had pre-ecclampsia that turned into HELLP Syndrome. They explained to me that my platelets were "eating" each other and I was very ill. I also had massive amounts of protein in my urine and abdominal pain on my upper right side. (I have that same pain on and off right now.) I got sicker and sicker and so did my son and he was eventually delivered pre-term and passed away three months later. At the time, they really didn't know how or why it happened. But they did say I would be a very high risk pregnancy from now on.
2. 1996-Three months after my son passed away I became pregnant again but only found out when I have having severe abdominal pain and it turned out I was having an ectopic pregnancy.
3. 1998-Pregnant with Kennedy-I was monitored constantly, she was always small for gestational size, my placenta always looked "ugly" according to my doctor. However, she was born healthy.
4. 2002-Pregnant with Lacey-New doctors at Good Samaritian Hospital in Cincy. They did some blood work and found that my blood was "over clotting". I was told to take Heparin shots twice daily and was monitored constantly. Lace was delivered early due to complications. She only spent 4 hours in the NICU and was fine. I however, developed staph infection at an IV site and had to go on antibiotics. Later, at that same IV site (while still on heparin) I developed a blood clot. I don't remember the specifics of it but the clot eventually went away.
I was told this clotting disorder would go away after pregnancy. From everything I'm reading this doesn't seem to be the case. From all my internet research I have all the symptoms of Hughes/APS. I went to the hospital where I delivered my last baby this morning for my records. It only states on my C-Section report that I was on Heparin prenatally for elevated antiplasmin levels and increased risk of thrombosis.
Does this sound familiar to anyone? Next steps?? Any help would be greatly appreciated.