Anyone else get pains in feet?? - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Anyone else get pains in feet??

lollie profile image
11 Replies

I can't believe the pain I get in my feet, they get so painfull at times I can't even wear socks or slippers. Standing and walking is soon pain full, the pain almost feel like its in every bone and muscle in them.... Keep being told there's nothing wrong with them, if so why do they hurt soo much that I could chop them off!!!!

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lollie profile image
lollie
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11 Replies
thomas70 profile image
thomas70

my feet burn at times and ache when i am on my feet to long, thats got to be a circulation problem

paddyandlin profile image
paddyandlin

I ave te same and they say it was the hughes and vit d as aps fab says I would go get a blood test to see

lollie profile image
lollie

Thank u all, I'm due to see go and have inr checks so will bring it up, again thanks and best wishes to u all x

MaryF profile image
MaryFAdministrator

Mine do this, but it does depend for me if there is any form of virus around! Mary F x

lovemyheart profile image
lovemyheart

Hi Thomas...mine do the same thing. Very true the B12 and D do help. I use vit C as well. Elevate your feet when you can throughout the day for ten or fifteen minutes at a time. Feel better...Teresa

jennybee profile image
jennybee

mine got really bad and had to go on short course of steroids which helped 100%. felt like a new person.... 5 months on... i can feel the pain starting to creep back in... the podiatrist gave me insoles.. so will see how i get on. be persistent with your doc to help you.

teadonna profile image
teadonna

Hi Lollie, i had pains in my feet in january 2012 , thought it was hard skin, as it was really sore when i got out of bed and tried to walk not too bad at first but got worse over time, my chirpodist thought it could have been Plantiar Facilities, so i brought splints to wear of a night , special orthopedic inners soles and shoes and doing exercised he recomended also had 6 weeks treatment of acupuncture but was still getting worse, so he wrote to my own GP to get a blood test done. the results did not come back with what the chirpodist was looking for so he said it was not what he thought it was and it could be something to do with my lupus. i then went in august to see my neurologist, i just happened in the off chance about my feet then he was feeling senses in it, asking various questions, he recommended i have a EMG (nerve test ) done, then they diagnosed Peripheral Neuropathy, i am in the process of trying different tablets still not found one that is really helping but hopefully they wil. Got to see neurologist again in April for check up etc .

I am still have trouble in the morning, i could scream trying to walk then, also now at the stage that if i sit for about 20 mins when i get up its painfull to walk. Now getting shooting pins and needles in my left in the thigh area, any time when in bed standing ironing and just sitting down.

Hopefully will find something that will help.

Good luck to you

Donnax

Annslack profile image
Annslack

It might be worth getting your uric acid levels checked also. Gout can cause pain like that where you can't stand anything even touching the foot. My two brothers and my Mum all have problems with gout and recognised this type of pain when I have had it. When I went to doctor he doubted it was gout but sure enough my uric acid level was too high. Mine was always worse when I stayed away from home and changed my usual diet. Good luck Ann

Andrewl profile image
Andrewl

Hi everyone, I haven't been on for ages, with commitments, and hampering weather making things difficult. However, I too get terrible pain in my right foot, and down through my toes, especially when sitting on my machinary for long periods. I cannot find any correlation between inr and this pain, and thought it might be footwear causing problems. About two years ago I was sent to a clinic, where they decided it was furring of the main artery into the groin, down my right leg. Thus, a circulatory problem. I was told that if it got worse, I should refer back to them, as they will need to stent the vessel, to stop any further damage. It has got worse, and I haven't gone, and should. But I just can't face surgery/proceedure at the moment. To begin with my GP suspected gout, but soon ruled out. Hope this helps.

Regards

Andrew

CanaryDiamond10 profile image
CanaryDiamond10

I'm so sorry you are in pain, lolllie. My husband, who does not have APS, and is a pretty healthy guy for aged 65. Just this past year he began having burning and stabbing sensations in the bottom of his left foot (heel and ball). His doctor placed him on a drug named Lyrica (I don't think they have a generic yet). It is a nerve drug that is prescribed for many types of pain. He was advised it may take a while to work. It's been a few months and he thinks it has lessened the pain, but it has not made it disappear. He only has the rest of this year to work and he finally retires in 2/14. His job is very physical and he is moving racks of chairs constantly on is feet. Just this past year he has begun huffing and puffing from 40 years of smoking. I was amazed he went cold turkey to quit (successfully thusfar) when his sister, 10 months younger, died of lung cancer with no warning in less than one week. He quit the day we burried her. It's been 5 years. Anyway, it may have nothing to do with APS. It sounds very similar to the type of pain he speaks of. You might ask your GP about Lyrica. Good luck.

Regards,

CanaryDiamond10

lollie profile image
lollie

Thank you all, there is certainly food for thought amongst all replies and more than a few questions for the next drs visit .... Thank you all x

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