I have aps but unfortunately for me I have suffered multiple infarcs and a cva stroke and am and have been unable to work since late 2010, I am on warfarin and need to take a dose of 11-12 tablets a day with a range of 3-4. My balance is very poor-recently I got out of the back of a family members two seater car, twisted my back and landed on my left leg bent with my right leg splayed to the side, over the next few days I could not lift my left hip flex, a week on the snow came and a slipped very hard as my two legs came from underneath me and landed hard on my back within the next few hours I was screaming in agony my hip was so bad I could not move my left foot an inch without sheer agony, screaming and with no other alternative but to cry out in pain as a release I called an ambulance, arriving at A&E I was left in a corridor and nobody came I could not lie down nor could I sit I continued to scream, eventually a Doctor came and told me to stop crying as I have not shut up since I got their! an xray of my hips were done that showed no fracture and I was sent home with anti inflammortarys.........(finding out later he had put reason for admission depression and back ache!!) Within hours I was screaming hysterically and another ambulance was called-17 hours in A&E still no help and ignored eventually I asked for the Heamos to be called following admittance whilst each and every one of the nursing staff, senior doctors said they would google APS I just wanted to die. An ultrasound was performed that showed a 5x5cm heamatoma my right hip muscle and that I was bleeding internally (2 pint loss) my right leg and back were now black and blue. I was not transfused but the warfarin was reversed, every awful symptom of the APS returned with a vengenance....
WHAT DOES THIS TEACH ME? NOBODY REALLY CARES OR UNDERSTANDS. I shall never go back to A&E, which leaves me in a very very bad place.....
Sorry this is so long, I think the answer here is no matter how many experts we see nobody really understands APS or wants to- the sheer misery physically and mentally it leaves you feeling.
Thanks for listening, part two to come @ London, god blessx