Sensation of brain vibration? Has any... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,354 members10,542 posts

Sensation of brain vibration? Has anyone experienced this?

SassyOne profile image
5 Replies

I was sitting on the ground listening to family talk when I started to get very dizzy, & fuzzy I had the sensation that my brain was vibrating & I was about to black out. It lasted just under 10 seconds, I don't think anyone noticed. Seconds later I felt fine. Not sure if its related but I have had increased nausea & lost most of my appetite. I have had many odd things happen before but this was a first. Any ideas what may have caused this? I've never heard of this before. Has anyone experienced this? I have an appointment with the dr tomorrow.

Written by
SassyOne profile image
SassyOne
To view profiles and participate in discussions please or .
5 Replies
Bagpuss01 profile image
Bagpuss01

I too have the issue of the problem with the head. To me it feels like pins and needles, I have to sit down for fear of passing out. I don't know what causes it, but its nice to know I am not alone. Good luck with doctor, take care. Sam :-(

GinaD profile image
GinaD

(Insert major shrug of shoulders here.). Could be many things. Some of my TIAs felt this way, but also this happens when winter dry indoor air dries out my ears too much. I have learned to use ear drops once or twice a week in winter. So, in my experience-- could be serious. Could be quite miner. Good luck.

iwantsimple profile image
iwantsimple

I get something similar to this, more like someone is squeezing or pinching my brain. It lasts for a few seconds and goes away. I do not feel nausea with it, but it is VERY disconcerting. My hematologist said that it is an APLS symptom.

SassyOne profile image
SassyOne

Thank you. My GP seems to think it may be a cardiac/oxygen to the brain thing. I am wearing a heart monitor for 2 weeks to try to catch a similar event. I didn't even think about my heart I guess I was assuming it was nuro or TIA related. Whatever it was it scared me, I've never felt anything like that. Ill keep you posted.

CountryGirl profile image
CountryGirl

I get this also - it feel to me like my brain is expanding or is been squeezed. I do not get any nausea associated with this. I used to get this almost every day but now it only happens occasionally.

You may also like...

Has anyone experienced pain along with pins and needles sensation?

ecg was fine, just want to know if anyone with aps has experienced anything similar?

Help - such pain - has anyone else experienced this.

used to - but what I have not experienced before is the severe pain I appear to have all over my...

Has anyone experienced Renal problems with APS

morning. My INR was 2.8 my previous one the week before was 3.8 and my D-dimer was normal my normal...

? Has anyone experienced extra pain when they started plaquenil

but it also makes my entire body hurt. Has anyone else had this response to the medication?...

Can anyone help with Brain Scan and underlying problems I have been experiencing?

tired like us lupies do so I had a lay down during that time I got really dizzy where it felt like...