I was diagnosed with APS after a stroke and a few tia's 12 years ago and am quite stable on warfarin. My rheumy started me on Plaquenil 10 months ago, even though I don't have a lupus diagnosis he thought it would help with the fatigue. I feel much better on the Plaquenil, and even though I still get tired easily from activity it's not like before, when for no reason at all I would be too exhausted to move. Also the crushing chest pain, an apparent spasm, not a cardiac issue, has gone away.
My joint pain has not decreased, and is in fact getting worse.
But now my hair is falling out! Rheumy always asks this question at my regular appts and I've always until now said, "no." Do you think it's the APS causing it, or the Plaquenil? Has anyone else had this problem?
You all are so helpful. Even though I rarely post here, I do value your comments and experiences with APS. (I'm in the US, so it's not called Hughes here.)