Any treatment for Anti-phospholipid Syndrome related skin bumps and nodules?

[paulus010101]

[dalalf]

I too have skin bumps that are not painful, did all the tests required but none of the doctors could provide an answer.

[paulus010101]

Started as itching bumps in scalp, then moved to upper body and upper arms; these receded but appeared in forearms, lower back and thighs. The problem is it is itching: wakes me up at night. Had biopsy: results indicated not infectious and looked like drug eruption or insect bites. But now getting red coloration around areas in eruption, mainly the legs and upper torso. Consumed all sorts of ointments and creams, antihistamines and 4 dermatologists: nothing doing it keeps progressing.

[paulus010101]

yea me too.

[Kentish_Man]

I get lumps that come up on my fingers that can hurt like hell for a few minutes or days then they just disappear. The same with marks, like bruises, and they disappear within hours. My latest is lumps in my heels. I asked my Rheumy about them but he just shrugged his shoulders. These have lasted now for over 3 months and, if anything, seem to be getting bigger. They can hurt on their own or when I try and put shoes on.

My GP just says that it is down to my Vasculitis, but no one has yet come up with a definite diagnosis for them.

[emmaj]

i have the same, alwa\ys there,someimes itchy,and if i exfoliate they hurt like hell!x

[paulus010101]

So no useful therapy?

[Jane-Martin]

Hi, you didn't say what medication you are on. It could be an allergic reaction which won't improve until medication is discontinued.

[Hidden]

I have the same thing. Also painful rashes. Doctor's have no answers. I also find that with each year that passes since I was diagnosed after small intestine infarct, the doctors become more complacent. It's about 10 years now and find the care less at 58 than when I 48. Anyone else experience this lack of concern as you get older. I find it very depressing.

[CanaryDiamond10]

Hi fxal: If I had the feeling that my doctors were not paying the same attention they paid me 10 years ago, I would be seeing new doctors and I would be letting them know exactly why. I would also be letting ALL their superiors know why as well so that the situation may be corrected in an useful manner. There is usually a mechanism in the hospital "chain of command" to correct the doctor and document the problem. Do his future patients a favor and bring this to the doctor's personal attention as well as his superiors and the hospital. You need not construct it as a complaint; construct it as constructive criticsm and, hopefully, it will be construed as such.

Smiles.

CanaryDiamond

[CanaryDiamond10 in reply to CanaryDiamond10]

PS: So sorry about your rash. I hope they find a reason soon.

[paulus010101]

Thank you for your concern and advice. I hope you have resolved your health issues.

[lovemyheart]

I had something like that a few years ago. My dr gave me acyclovir.

[paulus010101]

The three doctors I have seen firmly believe that it is not viral or bacterial.

[lovemyheart]

I had taken acyclovir fifteen yrs ago for chickenpox and then for shingles. But a few years ago an ugly rash broke out on me and the dr said it looked like pemphigold which comes from an autoimmune response. Prescribed acyclovir worked like magic

[paulus010101]

I shall talk to my doctor about it. Thanks.