I am about to shut the door now the horse has bolted but I am wondering if someone out there can help me find a firm answer.
My husband was diagnoised with APS after suffering a DVT 3 years ago. We were lucky to have a very switched on Senior Medical Specialist who thought there was no reason for him to get a DVT when he was fit and healthy so checked for APS.
When he got the results of the tests back 6 months later (they had to wait 6 months to stop his warfarin before they could do a second test, he said that his levels were so high that there was no doubt at all and he needed lifelong warfarin to prevent any other problems.
He has kept in good health since.
Last year he had to have surgery and so they stopped his warfarin 5 days out, and left him until the day before surgery, then admitted him to hospital to administer a Hepron infusion to prepare for the surgery.
At some point between his warfarin being stopped and being released from Hospital post surgery something happened. He lost his Adrenal Glands and now has Addison's.
My question is (and I have one) does anyone have anywhere I can go to get definite authoritative information on what forms a High Risk and therefore making Bridging with LWMH (clexane) vital. He didn't have his INR monitored and wasn't given LWMH during the 5 days prior to surgery so they have no idea what his body was doing. They appear to have looked at his DVT, thought "oh, 3 years ago, low risk" and didn't look at his diagnosis blood work, or the fact he was being operated on for active cancer.
Just an aside - they won't do ANYTHING to him now without transitioning him and because of the Addison's he is not allowed to wait in A&E if he turns up, which is good.