Does anybody else experience bad trem... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,402 members10,612 posts

Does anybody else experience bad tremors?

hmpowell profile image
7 Replies
Written by
hmpowell profile image
hmpowell
To view profiles and participate in discussions please or .
7 Replies
sharonap profile image
sharonap

Hi, I was dx with essential tremor mostly in my hands was told the medication was beta blockers but as i have very bad balance problems was advised not to have them. I think it also runs in our family as an aunty and my brother has it severe also my mum has just started with it. x

hmpowell profile image
hmpowell

Thank you. Nurologist thinks it is my meds but i have tried adjusting them to no avail. I also have migraines 3 or 4 times a week and not sure if these are linked.

Angelpaws profile image
Angelpaws

Hi - yes I get it too. it was horrendous when I was on warfarin, much reduced now I'm on Heparin. That could be because the warfarin was at the 'beginning' of the worsening of my condition, and I was just so very ill then. Both the Heparin and time have got me used to living with APS. When I get the tremours now, they are much gentler, but often accompanied by feelings of physical fatigue - achy muscles in arms and legs and back....as if I have run miles carrying the weekly shopping!!! The fact that I have reduced mobility and don't hardly leave the house and do all my shopping on-line doesn't help explain it at all!! Very weird...

Larraine x

Sal0712 profile image
Sal0712

Hi. I regularly get tremors which usually occur when I'm really tired and on occasions when I'm really hungry and had to wait longer for food for whatever reason. Are yours there all the time? Or, have you noticed they come in a pattern eg, when your tired, hungry etc?!!

hmpowell profile image
hmpowell

Thanks both of you. I seem to be exhausted all the time and have need housebound for 8 months

they seem tp have no pattern some days so bad i don't attempt to make a hot drink

after several burns but other days they can be quite mild. When they are bad i find it really distressing

Kentish_Man profile image
Kentish_Man

Hi, I also get the tremors/shakes. It can be when I am tired, or hungry or just for no reason. Sometimes I also sweat profusely, even if it is cold !! So there does not seem to be any real pattern or reason for mine. Whether it is due to my Hughes, or growing list of other ailments, I do not know either.

dutchess profile image
dutchess

i also have bad tremors , some days are better than others , Diagnosed with APS 7 years ago , have only had tremors the last 3 months since being taken off warfarin , Along with numbness and constant pins and needles in arms and hands .

Not what you're looking for?

You may also like...

does anybody else have hair loss?

its coming out at the roots again, it grows back because i have tufty bits of hair at the top of my...
emmaj profile image

Does anybody else here have Multiple Sclerois AND APS?

Hi, I have both of the above, recently diagnosed with APS after a series of frightening clots,...
anniesensi profile image

Does anybody have Sjodrens?

Does anybody else have Sjodrens, I have just had it confirmed that I have it and i am very worried...
Jade profile image

Anybody have experience of surgery while on warfarin?

I am hoping to have some elective surgery but am beginning to stress about how it would work when...
Jade profile image

Does anyone experience hairloss on warfarin.

I have noticed in last few weeks more comes out when washed or combed. I read it was a side effect...

Moderation team

See all
KellyInTexas profile image
KellyInTexasAdministrator
HollyHeski profile image
HollyHeskiAdministrator
lupus-support1 profile image
lupus-support1Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.