Post-stroke fed-up ness NOT depression

[Eliza_E]

Dear all,

Ben feeling propper fed up recently - stroke was 2 1/2 years ago almost and INR largely satablw since then. Been back working full time from June 2011 (stroke was \nov 2010 when son was 7 weks old) -but now at a stagew when just feling tired and a bit defeated by trying to do evereything -not helped that 2 1/2 year old is at fulltime nursery and has gets every infection going.

Anyway, upshot is really wanrting to know if anyone else in easy reach of Leds/Harroagte|?ilkley has had a stroke and wants to do a meet up? Have struggle dto find anyone who can reltae/understand. I don't fel the APS to much, or at leats ond' think that I do; full timr working mum in stroke recovery: can't tell whgihc bit of what I feel is sue to what....

so bit fed up o fbeing isolated fomr the world at large whohc pities/sympathise but cn't actually understnad what it's lik trying to get on and be normal when ou've only got hlaf a brain to do it ith.

PLs PM me if anyone out there who's alos had a stroke could gfancy a meet up.

E.

[panda60]

There is an organisation called Different Strokes which is specifically for younger stroke victims. Might be worth contacting the

Wishing you all the very best

[MaryF Administrator]

Hi there, sorry things are so tough... I also can imagine how it feels having felt very rough when my children were very young, and I did not have a stroke. But the chronic fatigues the varying states of our condtion(s) can bring on is awful, let alone the aches and pains and any residual disability. Hopefully having given your location, perhaps you there will be others on here who might want to meet up for a coffee or something - I find that solidarity with others can act as an energy boost. Best wishes.. please keep in touch. Mary F x

[Jade]

Hi I have APS, Sjogrens and fibromyalgia but fortunately I have not had a stroke. But I have raised 3 children with all that and I am just about 25 minutes from where you are. X

[k7pbx]

You have written my thoughts exactly. Thank you for sharing. Having my last stroke April 3, 2012, I have a 2x3x4 cm piece of dead brain tissue in my head. I feel useless, tired and done. Done with the Coumadin, Lovinox. I go for INR tests 1/2 as much as called for.

If you find help or an answer please share with me.

[Eliza_E in reply to k7pbx]

Fascinated to learn you know the size of your dead tissue, and really sory you feel the same way as me. I am v lucky in having a very supportive OH and dhave done as much reading as I acn about he side of my brain that's gone then try to make sense of it all - othewrwise I just try to slog on. Have found an FB group devoeted to oen of my frivolous intersts and that is helping -lots of lovely nonsensical people poasting lots of fun distracting nonsense. Have also realised this wewkend how much I need quiet alone time as th part of my brina that's ogne deals wiht incoming info and I hate being in busy noisy environments (work in a school so its dificult to escape it). Anyway, if you wnat to chat more, friend me on facebook - eliza ekstein) or PM me here

[k7pbx in reply to Eliza_E]

I feel a little better ths week after increasing Clonazipam. I found a good bok tha I just finished.

amazon.com/s/ref=nb_sb_ss_i...

Will in the office, and to block distractions, I wear ear plugs and headphones playing white noise. As you can see I don't check in often.

[Jenkine]

Hi there, I know what you feel like, it seems as though no one knows what is wrong with you when you speak with family and friends. Im fairly near you, live in Middlesbrough, could meet half way for a coffee...I think there was another lady that popped up aswell near you. lets all meet somewhere....let me know...Elaine x

[Jade in reply to Jenkine]

I was the person who also popped up, I am just about 25 minutes away from Eliza, on a good traffic day it quite easy to get to.