Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,397 members • 10,602 posts

All posts for June 2012

Anyone got any bright ideas on how to deal with oral allergy syndrome - particularly problems eating fruit?

I have Hughes, Sjorgrens, Fybromyalgia plus a few other things thrown in. I have always avoided fresh apple and tomatoes as they cause almost instance mouth...

I have Hughes, Sjorgrens, Fybromyalgia plus a few other things thrown in. I hav...

DorothyItaly

•12 years ago

14 Replies

Can anyone help with experience of Dental Implants with Hughes or other autoimmune diseases?

I am worried about the effect on Hughes syndrome, or impact on autoimmune disorders.Many thanks.

I am worried about the effect on Hughes syndrome, or impact on autoimmune disor...

CarolBSL

•12 years ago

6 Replies

holiday insurance

Hello well we are going to holiday in UK as thought we would do a last minute holiday abroad nearer the time in August, but need to get away for a fe days and...

Hello well we are going to holiday in UK as thought we would do a last minute ho...

daisy11

•12 years ago

13 Replies

Want to take advantage of all our features? Just log in!

Hello, I was wondering how many Hughes sufferers (APS) also have problems with periodontitis?

Hidden

•12 years ago

5 Replies

symptoms worse since having a baby, is this normal?

Hey! I was just wondering if any ladies had experience worse symtoms after having a child, I appreciate migraines and exhaustion comes hand in hand with...

Hey! I was just wondering if any ladies had experience worse symtoms after havi...

kay19987

•12 years ago

8 Replies

Current Radio 4 programme live for a short while: and relevant newspaper article:

1. http://www.guardian.co.uk/healthcare-network/2012/jun/11/patient-from-hell-gps-magazine 2. http://www.bbc.co.uk/programmes/b01jqd3v As...

1. http://www.guardian.co.uk/healthcare-network/2012/jun/11/patient-from-hell-...

MaryF

Administrator•12 years ago

1 Reply

For all you located in the USA - a useful resource - in case it is of interest!

Hi there. Most of you will have at some point come across this very professional organization, I often post this for people under their comments, but...

Hi there. Most of you will have at some point come across this very profe...

MaryF

Administrator•12 years ago

10 Replies

Waiting on my results but what a palava trying to get tested.

I read the article in the Sunday Mail a few weeks ago and alarm bells started ringing for me. I have 2 confirmed miscarriages & believe prior to this have had...

I read the article in the Sunday Mail a few weeks ago and alarm bells started ri...

Leelaked77

•12 years ago

6 Replies

A break in the pain

Hi there, I just have to share this to you... Maybe this is old news for you, but for those who are new to the disease and live in constant pain (like me) this...

Hi there, I just have to share this to you... Maybe this is old news for you, bu...

BrazilianBade

•12 years ago

7 Replies

I think we need to rethink our strategy on our posts on this forum regarding consultations ...

I am going to start off by saying please do not get the wrong impression about what I'm going to say. That may sound cryptic but all will hopefully become...

I am going to start off by saying please do not get the wrong impression about w...

travelnut

•12 years ago

27 Replies

Anyone know of a specialist pregnancy unit that deals with Hughes?

hi, after 3 miscarriages I have been diagnosed with Hughes and Factor v Leiden, We are planning to get pregnant as soon as my thyroid is sorted (another...

hi, after 3 miscarriages I have been diagnosed with Hughes and Factor v Leiden, ...

Kimmichelle86

•12 years ago

9 Replies

Uncle Benny!! :-) :-) :-)

Hi Jet Home and up and about, take it easy, no doing too much, the witches are watching!!! :-) :-) :-) Excellent news!! Hope you are feeling ok, get well...

Hi Jet Home and up and about, take it easy, no doing too much, the witches are ...

jessielou

•12 years ago

10 Replies

Do confirmatory tests have to be positive for Hughes Syndrome?

I tested positive for lupus anticoagulant in the hexagonal phase after developing PE's in both lower lobes. I have all the classic symptoms and have had...

I tested positive for lupus anticoagulant in the hexagonal phase after developin...

camerel

•12 years ago

11 Replies

WOW -cost of insurance

I cannot believe it - I have just been quoted over £500 for travel insurance for my first holiday since being sick to Cyprus for 2 weeks - I am gutted :(((

I cannot believe it - I have just been quoted over £500 for travel insurance for...

Lesley_D

•12 years ago

32 Replies

Please Please Help, do not understand what my GP has told me and unsure as whether I have Hughes or not.

I think (think being the operative word) that I have recently been diagnosed with Hughes, and have had no real help or information from my GP and thankfully...

I think (think being the operative word) that I have recently been diagnosed wit...

dragtalav

•12 years ago

12 Replies

need help pls

I've had a neurological condition for 8 years or maybe longer and was diagnoised with mild MS last febuary after a bout of diplopia. The neuro said ms ms is...

I've had a neurological condition for 8 years or maybe longer and was diagnoised...

nay87

•12 years ago

6 Replies

Thank you

I still find it hard to understand how some doctor's and professionals can treat people with no respect what so ever, it is awful. I'm so glad im not on my...

I still find it hard to understand how some doctor's and professionals can treat...

Beckyl1

•12 years ago

9 Replies

I swear I'm going mad!

I'm 20 and know I have APS. All the symptoms are there. I had a DVT when I was 16 and had a late miscarriage last November and started to do my research. I...

I'm 20 and know I have APS. All the symptoms are there. I had a DVT when I was 1...

MJLS

•12 years ago

13 Replies

Can someone help with talking me through costing for St Thomas

I'm looking at referring myself or going private. Can anyone give me some advice of how to do this and how much it costs etc?

I'm looking at referring myself or going private. Can anyone give me some advice...

MJLS

•12 years ago

5 Replies

How do we get doctors to believe that moving blood clots can be felt?

It's infuriating! We are fed up with doctors telling us "You can't feel a blood clot moving." My husband has APS & went in for a testosterone shot yesterday....

It's infuriating! We are fed up with doctors telling us "You can't feel a blood ...

sbncmo

•12 years ago

18 Replies

Joint/ Muscle pain that 'moves' around body

Hi everyone! Does anyone have joint and/or muscle pain that seems to migrate around the body at times? I have had shoulder/ upper back pain on one side for...

Hi everyone! Does anyone have joint and/or muscle pain that seems to migrate ...

Hilariew930

•12 years ago

47 Replies

Update

Bliemy well to update i am now taking 3 doses of 1200mg of gabapentin a day, on top of max co-odamol, and my other meds. Went to see consultant but saw a...

Bliemy well to update i am now taking 3 doses of 1200mg of gabapentin a day, on ...

Beckyl1

•12 years ago

6 Replies

Brain fog

When does 'brain fog' stop being brain fog and start becoming something you need to see the dooctor about. Today i was entering my email addy and could not...

When does 'brain fog' stop being brain fog and start becoming something you nee...

margaretjo

•12 years ago

14 Replies

An added post to Sheena's post to our Jet!

Just a pic' for you bud for when you can view it....thought it might cheer you up as you like the pics I find!!!! Have a speedy recovery & we are all...

Just a pic' for you bud for when you can view it....thought it might cheer you u...

Suzypawz

•12 years ago

10 Replies

Here we go.... big drum roll etc

As we approach the 800 mark with members, welcome everybody, this is growing fast now! http://www.youtube.com/watch?v=V1B5njIbtOE Mary F x

As we approach the 800 mark with members, welcome everybody, this is growing fas...

MaryF

Administrator•12 years ago

5 Replies

Atypical symptoms to APS??

I wondered if anybody else encounters the frustrating problem of when you see your specialist and give your account of the health problems and everyday...

I wondered if anybody else encounters the frustrating problem of when you see yo...

traceylou

•12 years ago

7 Replies

I'm Back

Hi all (I'm typing this with a smile) How are you all. I just wanted to say thank you to you all for your support the other day. I have a confession,...

Hi all (I'm typing this with a smile) How are you all. I just wanted to say...

Hidden

•12 years ago

8 Replies

Does APS have a symbol? Some kind of sign?

Hey guys, as per the question mentioned, do we have a sign like a ribbon in AIDS or a nipple in the breast cancer? If we do, I'd like to add it as a symbol to...

Hey guys, as per the question mentioned, do we have a sign like a ribbon in AIDS...

BrazilianBade

•12 years ago

4 Replies

Positive thoughts and good wishes, lots of luck to Jet!!!!! :-) :-)

Hi all I'm sure I speak for everyone in sending all the best, lots of luck and positive thoughts across the Atlantic to our Jet over in the USA. Jet goes...

Hi all I'm sure I speak for everyone in sending all the best, lots of luck and ...

jessielou

•12 years ago

15 Replies

APS in kids

Hi there, Have you got any news about APS in kids?. I've just heard about a 4 years old boy who has been diagnosed as having APS! Saludos.

Hi there, Have you got any news about APS in kids?. I've just heard about a 4...

David_Madrid

•12 years ago

7 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for June 2012

Anyone got any bright ideas on how to deal with oral allergy syndrome - particularly problems eating fruit?

Can anyone help with experience of Dental Implants with Hughes or other autoimmune diseases?

holiday insurance

Hello, I was wondering how many Hughes sufferers (APS) also have problems with periodontitis?

symptoms worse since having a baby, is this normal?

Current Radio 4 programme live for a short while: and relevant newspaper article:

For all you located in the USA - a useful resource - in case it is of interest!

Waiting on my results but what a palava trying to get tested.

A break in the pain

I think we need to rethink our strategy on our posts on this forum regarding consultations ...

Anyone know of a specialist pregnancy unit that deals with Hughes?

Uncle Benny!! :-) :-) :-)

Do confirmatory tests have to be positive for Hughes Syndrome?

WOW -cost of insurance

Please Please Help, do not understand what my GP has told me and unsure as whether I have Hughes or not.

need help pls

Thank you

I swear I'm going mad!

Can someone help with talking me through costing for St Thomas

How do we get doctors to believe that moving blood clots can be felt?

Joint/ Muscle pain that 'moves' around body

Update

Brain fog

An added post to Sheena's post to our Jet!

Here we go.... big drum roll etc

Atypical symptoms to APS??

I'm Back

Does APS have a symbol? Some kind of sign?

Positive thoughts and good wishes, lots of luck to Jet!!!!! :-) :-)

APS in kids

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