Joint/ Muscle pain that 'moves' around body

Hi everyone!

Does anyone have joint and/or muscle pain that seems to migrate around the body at times? I have had shoulder/ upper back pain on one side for a couple weeks, then that stops, and then it moves to lower back pain a couple weeks, then stops there, and then to elbow, etc. Very strange. Just curious if others have had this? I just began Plaquenil (generic form) one month ago, so I haven't yet noticed any benefit- too early I suppose.... I like to stay active and these pains can be completely debilitating and so frustrating!! Not to mention the general fatigue and slight depression just from feeling this way.

Sending positive thoughts and good wishes to all out there!


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21 Replies

  • Hi!
    This happens to me all the time! I have tried all types of medicines andevery thing i can rub on my joints. The only thing that has worked for me is icyhot. But not all icy hot. The one that works best for me is the spray presentation with 16% menthol ( highest percentage ive found).
    Hope it works for you too!
  • Yes I get this all the time. I take plaquenil but still get roaming pains. I think these "unexplained" roaming pains often confuse drs and so they can't relate and think we are imagining it. So frustrating.
  • A lot of people complain of this with 'fibromyaliga' it sounds very uncomfortable! Mary F x
  • Yep, roaming joint pain all the time. Plaquenil certainly has helped, but. I can't remember a day when I have been pain free. My consultant says this is common complaint of his Lupus\APS patients. Steroids really help, he wants me to take low dose every day, but even half a tab a day makes me depressed, so can't do that. It frustrates him as he says the pain is caused by inflammation and he can feel my joints are very inflamed. I also have tendonitis everywhere and this also causes pretty bad pain all over, especially in my jaw.. He put me on Tripiline for that, but I got terrible heart palpitations so stopped. I haven't told him that yet! Some days the pain is worse in different joints and tendons and that is probably what makes it feel like its roaming. Heat is what gives me some comfort. Pain killers dont seem to make a difference.
    Jane xx
  • I have had this also the pain could be in my head then my leg then my toe it can jump all over my body it eased a lot when I went on warfarin and Volterol
    Good Luck Sweetie x
  • Yeah, this sounds familiar to me too. Though my pain,when it roams, tends to stay in the same " quarter,". I.e., from left shin,to left thigh, to left hip, to left lower back.
  • I get this too. Like Jane painkillers don't make much of an impression, Ibuprofin works best but I can't take too much because I am on Heparin and have to be careful about stomach bleeds.

    I am allergic to paracetemol, and plaquenil and have just become sensitive to codiene. Great!

    Oh Joy! I can recommend gin though! x
  • Hi hon
    I get this too, a pain free day would be bliss,
    I take pregabalin and slow release tramadol, plaquenil, they help but pain still there :-(
    I tried the gin n tonic route, inr through the roof and loads of bruises, but felt good for a while!! :-) :-)
    Take care gentle hugs love Sheena xxxx :-) :-) :-)
  • Posting a little late but I struggled with roaming pain all over my body - i ve had it as long as I can remember and just assumed it was normal to be in pain everyday. I tried a good food elimination diet a couple years ago and my pain virtually disappeared after half a week. The biggest culprits for me were wheat and dairy. Most people scoff when I suggest this but food is one of the biggest substances we put in our bodies plus the elimination diet has less side effects than most any medication. Try it for a week - it worked for me. As long as I avoid those (and a couple of other foods since my body appears to be real sensitive) I am pain free!!
  • hey..I am also suffering from this very frustrating pain which moves allover in body specially in upper back and left chest..I am in depression coz of this
  • Hi, I know I am replying to your post 8 months down the line and I hope it's ok but I was wondering if you still use the food elimination diet and if it still works for you. I too get pain roaming all over my body and having been like this for a few years with nothing really helping. i have had full blood tests which have all come back clear so i am at a loss of what to do. I am at the stage where I think a change in my diet could be worth a try. I don't eat very healthily, lots of bread, cereals, dairy products and sweet things as well as diet coke. How do you go about eliminating foods? Do you just try one at a time and keep a diary or go for a few different foods... Is there maybe a book I can get with information? I am certainly going to give this a try as sick of feeling like this and doctors not taking it seriously.. So sorry to waffle on like this but really need to sort myself out
    Many thanks - Jo
  • Hi Jo, Do you have APS (Hughes syndrome)? Who is treating you APS symptoms?

    This is a site for people with APS. We are not Medical trained but try to help each other quite voluntary.

    If you have a diagnose of APS please ask a new question on the site That would be best for you.

    Best wishes from Kerstin in Stockholm
  • Hi I was wondering if you have tried the diet and if it worked for you?
  • Hi, can you tell me
    More about the elimination diet!?
  • I’m 38 and constantly suffer from joints and muscle pain, especially following physical activities. I heard about a new product, which relieves pain available on the British market. It’s Amber Ointment. I heard that it’s all natural. Has anyone tried it? Where can I buy it?Maybe it's worth trying
  • Muscle and joint pain
    There are several kinds of pain that sits in muscles and joints. Ache due to overwork, inflammatory pain such as rheumatic pain and fibromyalgia are some
    I will not go into the school medical definitions of different types of pain. Even today, has not even the whole picture of what causes such as fibromyalgia and rheumatoid arthritis.
    Ayurveda, I think gives a better understanding of how pain occurs and how to treat based on what kind of pain it is.
    The vatarelaterade pain comes from a vataöverskott in the body, which can arise from too much cold, wind, drafts, vatahöjande food (dry, cold, raw food), overwork, stress for prolonged periods of several causes. Vatavärk characterized in that it frequently moves around the body and may be in different locations on different days. Fibromyalgia may be a type of pain. Pain in general is often a sign of a vataöverskott.
    Vatavärk which lasted a long time has probably also been built up over a long period of time and there may be an accumulation of waste products in the body - amateur - who sat in the muscles and joints. Ama is formed first and foremost when digestion is not functioning optimally. When you eat too much and overload the stomach and intestine, stress at mealtimes and inappropriate food makes ama can be formed. Running this for some time, becomes the digestive tract overwhelmed with ama ama and move to the last out of the body. Ama has a tendency to settle in the body's weak points and it could be the joints of a vataperson or muscles of a kaphaperson.
    If you have inflammation of the muscles or joints, it is often an pittaöverskott involved. Inflammation is characterized by redness and warmth, which are typical characteristics of pitta. A vataöverskott may lie in the bottom plus ama. The body reacts with wanting to "burn" the ama and inflammation occurs. Inflammation can of course also occur with an injury and then is a natural reaction in the body without the ama is there.
    Treatment according to Ayurveda
    Short term health problems caused by cold, drafts and overwork or similar managed with vatabalanserande measures: rest, heat, eating ginger and turmeric, cover with warming herbs, massage with warm oils. Are muscles and joints stiff can care strechtning and yoga be beneficial.
    At long-term problems when ama is involved where the body must be able to do away with ama. The challenge is to bring order to the digestive and take various purifying action special diet for a period. Herbal drinks and Ayurvedic food supplement that helps to cleanse the body may be appropriate.
    When muscles and joints are inflamed applies to both dampen down the inflammation with refreshing herbs, for example in the form of cover, but also to deal with too much ama in the body. Purifying teas, spices, and supplements that guggul can be used in addition to a pittabalanserande diet.
    At a health consultation tries to get the whole picture of the man and his current situation so that each person receives individualized advice.
  • Hi, This is a site for Hughes Syndrome (APS). We all have APS here.

    May I ask if you have got APS and who diagnosed you and where your are from?

    Because if you have APS, In that case we can perhaps help you.

    Best wishes from Kerstin in Stockholm
  • Does anyone take Statins and are having pain? I have the exact same pain as described in original message and it started a few months after starting Statins. (Lipitor)
  • yes i have mostly the same issues...with pretty large swelling accompanying the pain
  • Yes, I get this and sometimes it is so painful I need help undressing and dressing. I was told by my Canadian rheumy that it is CCp positive arthritis. C reactive. Just google ccp arthritis. Talk to your MD about it.
  • I got relief for muscle pain by taking magnesium 200-400mg per day and making a syrup (lotion) of magnesuim with 4 parts ,1/2 cup Epsom Salt and 1 part boiling water. Let it cool and rub on sore muscles. I have been rubbing on my sore muscles for years and can't live without it. Doctors don't know about nutrutional remedies.


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