APS in kids: Hi there, Have you... - Hughes Syndrome A...

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APS in kids

David_Madrid profile image
7 Replies

Hi there,

Have you got any news about APS in kids?. I've just heard about a 4 years old boy who has been diagnosed as having APS!

Saludos.

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David_Madrid profile image
David_Madrid
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7 Replies
MaryF profile image
MaryFAdministrator

Hello there

There are a few papers and studies around: Here are a couple for you:

sciencedirect.com/science/a...

and haematologica.org/content/9...

I hope this is helpful. Mary F

David_Madrid profile image
David_Madrid in reply toMaryF

Thanks MaryF.

I will pass this info to the boy's family.

Saludos.

It definitely exists but, thankfully, is rare. The youngest I've heard was a four year old who had a DVT. Prof Beverley Hunt is the leading UK proponent of this so you could try searching PubMed for any research articles. There isn't much published to my knowledge but they do see children at the Evelina ward at Tommies.

David_Madrid profile image
David_Madrid in reply to

Thanks Kate. In fact, the kid lives in Spain (he is Spaniard, and me too by the way) and I guess travelling to London is going to be close to impossible. Docs are pretty good here but the family wants to collect as much info as possible. As you say, they suspect the case is not very common and just want to nock all the doors. I will give your info to them, of course, so that they can decide. Thanks again.

Saludos.

MaryF profile image
MaryFAdministrator in reply toDavid_Madrid

y si la familia desea unirse a este foro - Google trabaja para traducir un lenguaje básico, deseando lo mejor y esperamos que la información es útil. María F

and if the family wish to join this forum - google translate works for basic language, wishing you well and hope the information is useful. Mary F

in reply toDavid_Madrid

There is a very well-known Spanish doctor called Ricard Cervrera:

med.ub.es/MIMMUN/PERSONAL/C...

He is mainly an international researcher and a leading light in the APS medical community but he might have an interest in the case, or at least point you in the right direction for a specialist.

I know that Spanish doctors tend to be well versed in APS so am sure they will be able to get good treatment.

Hope all works out ok :)

David_Madrid profile image
David_Madrid

Thanks for your help.

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