Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for June 2012

have you been made a Brain SPECT?

Hello again! After being kicked by my Neurologist (not literally) because he does´t believe me and says none of this foggy mind, memory loss, ...is related...

Hello again! After being kicked by my Neurologist (not literally) because he ...

swirl

•12 years ago

10 Replies

My story

Hi all, I have been a member of this site for several months now, but have found it difficult to tell my story as it seems kind of pathetic compared to some...

Hi all, I have been a member of this site for several months now, but have found...

AlisonT2

•12 years ago

13 Replies

Saw my General Practioner

She truly showed concern for my symptoms and didn't try to say you are stressed or crazy which was great. She mentioned that many are neurologic in nature and...

She truly showed concern for my symptoms and didn't try to say you are stressed ...

babyblooeyes

•12 years ago

2 Replies

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What can you take if you have Hayfever that doesn't affect warfarine?

Danimgw

•12 years ago

6 Replies

Anyone else have Low Factor VIII Levels???

I has occurred to me that I may be alone with this - so am asking, for it has made my APS quite difficult. Because my Factor VIII Levels are low (which is...

I has occurred to me that I may be alone with this - so am asking, for it has ma...

Leigha

•12 years ago

6 Replies

Any of you have phantom pain from loss of a limb, due to APS???

77tiger05

•12 years ago

4 Replies

Is anyone else taking Rivaroxaban?

Hello, I had my APS confirmed 2 weeks ago after sufferring various symptoms for the last few years. My GP told me that my only problem was being overweight and...

Hello, I had my APS confirmed 2 weeks ago after sufferring various symptoms for ...

Glitterwitch

•12 years ago

8 Replies

unexplainable sholder pain

My wife who has APS is getting unexplained sholder pain - starts in the right and goes into the right eventualy... also will get a raspy voice... no signs of...

My wife who has APS is getting unexplained sholder pain - starts in the right an...

Skyllark

•12 years ago

4 Replies

Sue

Hi everybody, I have been reading the blogs for several weeks and often see posts that reate to Rheumotologist appointments. I am probably being really thick,...

Hi everybody, I have been reading the blogs for several weeks and often see pos...

Suejane

•12 years ago

14 Replies

How is your working life since APS? Do you recieve any kind of help from Government?

As I wrote before, I´m now working half of the time (and it´s becoming too much now). Almost everyday going to hospital to check my INR (it´s 20 km far),...

As I wrote before, I´m now working half of the time (and it´s becoming too much ...

swirl

•12 years ago

9 Replies

APS - confirmed

Received copy of the letter consultant sent GP most I dont understand and a bit I forgot he told me, but it states APS- confirmed thats the first time anyone...

Received copy of the letter consultant sent GP most I dont understand and a bit ...

sharonap

•12 years ago

6 Replies

Maybe LUPUS

I just saw a rheumatologist who does not think my symptoms are APS symotoms. ( I had one positive test for APS antibodies that was very high in 2011, and was...

I just saw a rheumatologist who does not think my symptoms are APS symotoms. ( I...

haley

•12 years ago

5 Replies

My APS experience - hopefully I'm not alone!

Hi, I would like to hear from anyone who may have had a similar experience to mine. (Apologies if this is repeat of what others may have written but I have...

Hi, I would like to hear from anyone who may have had a similar experience to mi...

APSmum

•12 years ago

18 Replies

Update from Oz

Hi, all. Sorry we have been out of contact for a while, but we have been busy getting tests done at St Vincent's Hospital in Melbourne, Victoria. So far the...

Hi, all. Sorry we have been out of contact for a while, but we have been busy g...

WayneL

•12 years ago

10 Replies

bee stings

Has anyone else had an odd reaction to bee stings? I have been stung five times and the initial swelling went down but have returned 5 days later and has...

Has anyone else had an odd reaction to bee stings? I have been stung five times ...

sangje

•12 years ago

4 Replies

help/advice from anyone in the know at st thomas' please.

Hi al, I need some help and pointing in the right direction, this may be a long one so feel free to switch off if you get bored........ Im at a bit of a loss...

Hi al, I need some help and pointing in the right direction, this may be a long ...

emmaj

•12 years ago

7 Replies

low libido - following poll re testosterone...

Hi i was heartened (weird thing to say in the context) to read that other people suffered from a low libido - it may not be "just me"!! i will...

Hi i was heartened (weird thing to say in the context) to read that other peo...

Hidden

•12 years ago

6 Replies

vein in arm with lump

Well I have always been good with having blood taken, but on Wednesday the nurse at hospital was so busy that he hurt me and now have a lump, I phoned and they...

Well I have always been good with having blood taken, but on Wednesday the nurse...

daisy11

•12 years ago

4 Replies

sorry not been around much.

To me it's no excuse but I havn't beent too well recently & is embarrasingly struggling....so thats why I havn't been on here :( My head feels not in the...

To me it's no excuse but I havn't beent too well recently & is embarrasingly str...

Suzypawz

•12 years ago

47 Replies

IV cyclo and Rituixmab

My main drs have in the past told me I have vasculitis and lupus and back in 2009 I had IV cyclo then in Jan 2010 Rituximab. When they started the Rituximab...

My main drs have in the past told me I have vasculitis and lupus and back in 200...

annie330

•12 years ago

2 Replies

why dont we collectively write an article to be published?

just a thought but we all got so much in common and one thing that strikes me is a lot of us suffer miserably from the less published side of having APS eg...

just a thought but we all got so much in common and one thing that strikes me is...

kathyD64

•12 years ago

39 Replies

ESA

Got first letter today regarding ESA which tells me I will receive a phone call than a questionaire and than medical... how lucky am I !!!! Just worried that...

Got first letter today regarding ESA which tells me I will receive a phone call ...

sharonap

•12 years ago

11 Replies

Anyone ever had glandular fever afte their APS diagnosis?

Got some hideous virua which may be glandular fever..will know moer fter this Friday's blood test. ANyone any ideas how long it takes to shift?

Got some hideous virua which may be glandular fever..will know moer fter this Fr...

Eliza_E

•12 years ago

7 Replies

Does anyone have Left Middle Back pain when taking deep breaths?

I'm having left middle back pain when taking deep breaths. This has been going on for three months. The xray I had was normal. Anyone had a similar problem?...

I'm having left middle back pain when taking deep breaths. This has been going ...

jean48

•12 years ago

12 Replies

Re: Aps strain

Hi All, Hope ye are all well...Just wondered can anyone explain to me what having the aps strain means for me...I am a bit confused...thanks a million...

Hi All, Hope ye are all well...Just wondered can anyone explain to me what h...

tAigers

•12 years ago

2 Replies

always feel tired with Antiphospholipid syndrome?

Hello! I'm writting from Spain. APS is not very well known here...I'm trying to share experiences with other people but I can´t find anyone :( . Any foundation...

Hello! I'm writting from Spain. APS is not very well known here...I'm trying to ...

swirl

•12 years ago

20 Replies

Have met a couple of consultants recently who have a gobsmackingly different opinion of Hughes syndrome!

Was diagnosed with Hughes by Hughes a couple of years ago and have had 4 positive Anticardiolipin tests over time but although I have had plenty of TIA-like...

Was diagnosed with Hughes by Hughes a couple of years ago and have had 4 positiv...

Eagle

•12 years ago

11 Replies

Tired of this Merry Go Round....DOES IT END????

Was advised by another APS patient to see this "fantastic" heamotoligist here in Perth Australia....so off I went with my referral. Outcome total and utter...

Was advised by another APS patient to see this "fantastic" heamotoligist here i...

Mystynzl

•12 years ago

12 Replies

has any one with APS suffer with any eye problems.

im an APS sufferer and today im being refered to the eye hosp due to something sticky blood has corsed to my eye,, not quite sure what yet till go get to the...

im an APS sufferer and today im being refered to the eye hosp due to something ...

sweett

•12 years ago

9 Replies

London support group meeting tomorrow evening (Wednesday 13th June) at St Thomas'

Hi All Just to let you know that Ann is holding her monthly support group meeting in the Riverside lounge area (just past AMT coffee shop) at St...

Hi All Just to let you know that Ann is holding her monthly support gro...

Hidden

•12 years ago

3 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for June 2012

have you been made a Brain SPECT?

My story

Saw my General Practioner

What can you take if you have Hayfever that doesn't affect warfarine?

Anyone else have Low Factor VIII Levels???

Any of you have phantom pain from loss of a limb, due to APS???

Is anyone else taking Rivaroxaban?

unexplainable sholder pain

Sue

How is your working life since APS? Do you recieve any kind of help from Government?

APS - confirmed

Maybe LUPUS

My APS experience - hopefully I'm not alone!

Update from Oz

bee stings

help/advice from anyone in the know at st thomas' please.

low libido - following poll re testosterone...

vein in arm with lump

sorry not been around much.

IV cyclo and Rituixmab

why dont we collectively write an article to be published?

ESA

Anyone ever had glandular fever afte their APS diagnosis?

Does anyone have Left Middle Back pain when taking deep breaths?

Re: Aps strain

always feel tired with Antiphospholipid syndrome?

Have met a couple of consultants recently who have a gobsmackingly different opinion of Hughes syndrome!

Tired of this Merry Go Round....DOES IT END????

has any one with APS suffer with any eye problems.

London support group meeting tomorrow evening (Wednesday 13th June) at St Thomas'

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