It's infuriating! We are fed up with doctors telling us "You can't feel a blood clot moving." My husband has APS & went in for a testosterone shot yesterday. Our nurse, who believes he can feel clots, had a student nurse with her & our nurse had my husband tell what happened last year when he felt a clot go thru his lungs, up thru his head making his right side numb, then stop in his left temple & 2 weeks later, an aneurysm ruptured - the ENT who cauterized it said it was from a blood clot & it was exactly where my husband felt it stop. The student nurse said they are taught that people CAN & DO feel blood clots. Now, if the nurses believe us, why don't the doctors?
Yesterday afternoon, after having that conversation with the nurses, my husband went to the ER - he felt pain rolling up a vein from his neck & stop behind his ear, he was dizzy & his lips were numb. We see the doctor & tell him that our doctor wants him checked out to see if he has a blood clot. It was the same reply as always - you can't feel a blood clot move' you can only feel the result. Then I told him about what happened last year & he said "Oh, I believe you." Thankfully my husband didn't have a blood clot this time.
But there is a MAJOR problem in the medical field when doctors keep insisting that feeling a clot move isn't possible. If the current generation of nurses are being taught that you can feel clots, why aren't doctors being brought up to date? Granted, not every doctor is going to know everything about APS, but they should know some, including the fact that many people can feel clots move. Is this a problem everywhere or just in the USA? How do we get these doctors to get the facts?