I have just returned home from yet another hospital stay, this one only short thank heavens, I had thought I was getting to grips a bit with this apls but ive just been given a different story again. I was admitted with sever pain in my back and breathlessness on the slightest movement. I had a ct scan of my lungs coz thats where the previous clots have been, but it didnt show either a clot or infection (ive had pneumonia $ times in the last 12 months) and all my blood tests were ok apart from the d dimer which was very elevated to about 2600, which according to the figures shows i have a clot somewhere but i havent any symptoms any where else. They did try to tell me i couldnt possibly have back pain, pe's always cause chest pain but the pain every time has been in my back, Anyway they said they couldnt explain the breathlessness and i should join a gym to get fit. I just laughed at that coz at the moment i cant breathe if i walk to the loo.So what i wanted to ask was does any one have an explanation of why the d dimer was so high but no clot or experienced something similar themselves, Thankyou
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