Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,392 members • 10,588 posts

All posts for February 2012

Loosing weight

Hi Does any one find it hard to loose weight? When I was diagnosed with APS and Sticky blood, I just put on weight, at first I thought it might have been...

Hi Does any one find it hard to loose weight? When I was diagnosed with AP...

Stannington-lad

•13 years ago

11 Replies

Does anyone have experience of taking hrt with anticardiolipin antibodies?

millsy

•13 years ago

13 Replies

INR

Weird - or I am weird!! yup that must be it! My INR target is 3 - 4 When it is in the 2's my gums bleed, I cough up blood and my throat bleeds when I...

Weird - or I am weird!! yup that must be it! My INR target is 3 - 4 When ...

Lesley_D

•13 years ago

12 Replies

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st thomas

hi alot of people get refered here, if i went what would i find out different,as im in leicester

hi alot of people get refered here, if i went what would i find out different,as...

roymelt

•13 years ago

8 Replies

does anyone know

does anyone know how long fragmin lasts is it 12hrs or 24 thanks

roymelt

•13 years ago

6 Replies

skin problems - dec 26 2011

dec 26 2011 had bad reaction to something they cant identify , body from neck down to ankles broke out like bee stings , got real red and itched bad, head and...

dec 26 2011 had bad reaction to something they cant identify , body from neck do...

jetjetjet

•13 years ago

24 Replies

Have you read this Information

Hi there looking for my hospital appointment I came across info that is very interesting about Hughes It's a online paper of Professor Yasser Metwally I...

Hi there looking for my hospital appointment I came across info that is very int...

taffydaffy

•13 years ago

11 Replies

clexane and warfarin

Hello, I went for my usual test yesterday it it is 2.4 so on Clexane, was told to take this if it falls below 3 also I take Warfarin. I thought my INR low as...

Hello, I went for my usual test yesterday it it is 2.4 so on Clexane, was told t...

daisy11

•13 years ago

14 Replies

Unstable to travel

My cousin is getting married in Thailand and I emailed the specialist nurse last week for advice re travelling. She rang me today to say that they had had a...

My cousin is getting married in Thailand and I emailed the specialist nurse last...

annie330

•13 years ago

10 Replies

Sign the Prescription Charges Campaign petition to make the prescription charges system in England fairer

The Hughes Syndrome Foundation has been a member of the Prescription Charges Coalition since its inception back in June 2010 and we are asking you to join us...

The Hughes Syndrome Foundation has been a member of the Prescription Charges Coa...

Hidden

•13 years ago

5 Replies

Information - our greatest ally

Hi all. Have been searching the web and found this site that must be linked to the Foundation some how ,but is still great source. Try this out -...

Hi all. Have been searching the web and found this site that must be linked to ...

WayneL

•13 years ago

4 Replies

Has anyone seen Dr M Cuadrado at St Thomas's?

Hi Guys'n'Girlz Well I saw my hematologist 2 weeks ago, and today received my first appointment for St Thomas's for 21 Feb. I have Primary APS, no lupus that...

Hi Guys'n'Girlz Well I saw my hematologist 2 weeks ago, and today received my f...

Lesley_D

•13 years ago

10 Replies

anyone on aspirin and diprydimole?

I have APS and have had a stroke but am treated with aspirin and diprydimole how do i know this wont happen again as levels not monitored?

I have APS and have had a stroke but am treated with aspirin and diprydimole how...

xxtracyxx

•13 years ago

5 Replies

Is it "normal"for Hughes patients to have passing memory problems?

My Daughter is having increasingly longer periods when she is unable to communicate and is unaware of her location or surroundings. It means that she is going...

My Daughter is having increasingly longer periods when she is unable to communic...

WayneL

•13 years ago

25 Replies

vitamin D

I was prescribed a very high dose of Vitamin D from the endochronologist which made me ill for around 3 weeks. Having recovered from that I am supposed to take...

I was prescribed a very high dose of Vitamin D from the endochronologist which m...

purple

•13 years ago

5 Replies

Is my INR at a safe level?

My ideal therapeutic INR is 3-4 but when i reached the right level i had a spontaneous abdominal haematoma so now my INR has to be between 2-3. I am now...

My ideal therapeutic INR is 3-4 but when i reached the right level i had a spont...

Mel1270

•13 years ago

10 Replies

I

I was diagnosed with APS after 2 miscarriages. I had one meeting with a nurse specialising in thrombolitic disorders who informed me of symptoms of APS I need...

I was diagnosed with APS after 2 miscarriages. I had one meeting with a nurse sp...

Caroline3

•13 years ago

3 Replies

REFERAL

Just wondered how i go about getting refered to Dr Hughes in London . I have been under my Haemotogist for 7 years and diagnosed with Lupus anticoagulant /...

Just wondered how i go about getting refered to Dr Hughes in London . I have bee...

Hidden

•13 years ago

2 Replies

Temporary paralysis

Does anyone with Hughes have "attacks" were you become temporarily paralyzed? This is happening to me and I think I am dying in the moment. Thanks guys I could...

Does anyone with Hughes have "attacks" were you become temporarily paralyzed? Th...

DawnS

•13 years ago

12 Replies

appeal success

just to let people know esa appeal successfull look nearly 5 months

roymelt

•13 years ago

14 Replies

A few very basic APS questions... Just curious

I'm curious about what you do daily with APS and what makes you feel best? And some other stuff.... I tend to feel best when I can actually get the energy to...

I'm curious about what you do daily with APS and what makes you feel best? And s...

Hilariew930

•13 years ago

4 Replies

Hi there, I woke up this morning with tinnitus. I feel dizzy and weak and very 'yonderly', if people know what I mean by this word? Anyone

else get like this?

MaryH

•13 years ago

11 Replies

Skin Necrosis

Just want to say thank to those of you who replied to my question re skin necrosis, I have already passed on your advise to my sister, She is going to make on...

Just want to say thank to those of you who replied to my question re skin necros...

JoyceyMee33

•13 years ago

3 Replies

Does anyone have Temporal Arteritis? If u do, how is it treated? Thanks

quickchick

•13 years ago

5 Replies

follow up to the one i posted last week about red spots and rashes

saw the doctor today and he said the small red spots are blood spots and don't worry, told him about my hand being painful in the morning and stiff so he is...

saw the doctor today and he said the small red spots are blood spots and don't w...

christinebonner

•13 years ago

8 Replies

Does anyone have any information regarding skin necrosis.

My sisister has contacted me to day to see if I knew anything about skin necrosis (she has a the same condition as I do thrombophillia, prothombin gene...

My sisister has contacted me to day to see if I knew anything about skin necrosi...

JoyceyMee33

•13 years ago

3 Replies

Unsure and concerned?

Hi, Everyone. I'm new to this whole APS syndrome as I am now the carer of a young lady who has this disorder and has been battling it alone for the past 15...

Hi, Everyone. I'm new to this whole APS syndrome as I am now the carer of a you...

WayneL

•13 years ago

24 Replies

NEED YOUR ADVICE !!!!!!

Hi I was diagnosed with sticky blood 6 month ago after routine screening for going on to Anti TNF treament , i was told to take asprin daily. i have suffered...

Hi I was diagnosed with sticky blood 6 month ago after routine screening for go...

garybstiff

•13 years ago

9 Replies

Help needed... pregnancy question

Hello evetyone,. I have just found out that I'm pregnant (only about 4 week). This is my 8th pregnancy (only 1 child though). My question is a bit of an odd...

Hello evetyone,. I have just found out that I'm pregnant (only about 4 week). ...

kateb81

•13 years ago

12 Replies

plz help

how do i get a referral or appointment at st thomas plz ppl

rach1081985

•13 years ago

5 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for February 2012

Loosing weight

Does anyone have experience of taking hrt with anticardiolipin antibodies?

INR

st thomas

does anyone know

skin problems - dec 26 2011

Have you read this Information

clexane and warfarin

Unstable to travel

Sign the Prescription Charges Campaign petition to make the prescription charges system in England fairer

Information - our greatest ally

Has anyone seen Dr M Cuadrado at St Thomas's?

anyone on aspirin and diprydimole?

Is it "normal"for Hughes patients to have passing memory problems?

vitamin D

Is my INR at a safe level?

I

REFERAL

Temporary paralysis

appeal success

A few very basic APS questions... Just curious

Hi there, I woke up this morning with tinnitus. I feel dizzy and weak and very 'yonderly', if people know what I mean by this word? Anyone

Skin Necrosis

Does anyone have Temporal Arteritis? If u do, how is it treated? Thanks

follow up to the one i posted last week about red spots and rashes

Does anyone have any information regarding skin necrosis.

Unsure and concerned?

NEED YOUR ADVICE !!!!!!

Help needed... pregnancy question

plz help

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