anyone on aspirin and diprydimole? - Hughes Syndrome A...

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anyone on aspirin and diprydimole?

xxtracyxx profile image
5 Replies

I have APS and have had a stroke but am treated with aspirin and diprydimole how do i know this wont happen again as levels not monitored?

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xxtracyxx
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5 Replies
77tiger05 profile image
77tiger05

Can't figure out why aspirin & diprydimiole together. Diprydimole is to keep your blood from clotting. So I wish I had an answer but I don't, but I wish you well!!

Storky profile image
Storky

Are you under St Thomas's? I decided to see Prof Hughes after my Stroke and he told me that once you have had a thrombotic event he likes to put his patients on more than Aspirin, He said that if I was his wife he would have me on Heparin which was enough for my husband and I to take the decision to start the trial of Heparin injections to see how I got on.

If that trial works well then the normal course of action is to swap on to warfarin.

Of course each of us is different and your stroke could have been because of a bleed rather than a clot because you do not say and there may be other factors why your doctor has you on the meds you are on. So you need to discuss this with them if you are at all worried about the possibilities or having another event.

Come back and let us know how you get on.

xxtracyxx profile image
xxtracyxx

not under st thomas's unfortunately and it was a clot - I dont think i have found anyone else on this combination

Scatterygirl profile image
Scatterygirl in reply toxxtracyxx

I am on the same drug, have just joined this site and am looking through some of the questions, you are the first person I have found that is on my drug, I was almost starting to think that I was on the wrong treatment. I had a brain bleed which was followed by a stroke. It went undiagnosed for 6 months while waiting for a dopler scan and a brain scan. The doctors thought I had Bells Palsy, when the scan results came in they showed I had indeed suffered a stroke. I was first put on warfarin, then I got a call from my doctors asking me to come in and see them. They then told me that my blood tests had been read incorrectly and I was on the wrong drug (warfarin) so they changed me to Assasantin. I am not monitored either, I have a blood test once a year. I have just received the results of my last one and they are concerned that I am making too many white cells and that my B12 is too low. I had no idea what was wrong with me and the only answer I have ever had is that I have "sticky blood"

good to find you on here .

paddyandlin profile image
paddyandlin

Hi Tracy,

After my first stroke i was put on this drugs due to the fact of my life style as i was in a manual chair and had kids, but it was due to my active life and the fact the stroke and when i got diagnosed was so far apart, but then i then had server symptoms and was then moved to warferin after my second stroke. so i would say they either saying you have not had a clotting event to warrent warferin or it could be due to your life style .

i would speak to your doc and ask why not warferin.

happy to help where i can

paddy

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