Information - our greatest ally

[WayneL]

Hi all.

Have been searching the web and found this site that must be linked to the Foundation some how ,but is still great source.

Try this out - Rheumatology.oxfordjournals.org

Found many medical explanations and research notes.

May help explain thing to your GP, if nothing else.

Hope this helps,

Wayne L

[taffydaffy]

Hi

I Invested in a medical book on Antiphospholipid Syndrome and gave it to my Doctor as I am the only 1 with it out of 10,000 patients the book was way way over my head he loved it there was method in my madness x

[WayneL in reply to taffydaffy]

Hi, Taffydaffy

My daughter has done exactly the same thing (at a cost of $200AUD) for her GP buying the latest medical text from Prof. Hughes and Dr Kamashta. Has been very helpful thus far.

Wayne L

[MaryF Administrator]

Yes lots of suggested reading on The Hughes Syndrome Foundation, and also books for sale on there, which of course raises vital funds for research and information. Mary F

[paddyandlin]

as mary and taffy said very good site

paddy