I'm new to this whole APS syndrome as I am now the carer of a young lady who has this disorder and has been battling it alone for the past 15 odd years.
Firstly, thanks to all who post here,as it helps many others who are seeking answers to their own circumstances.
Secondly, as we are on the other side of the world news is hard to come by.
Here in Australia, the syndrome is virtually unknown by the medical fraternity.
Treatments are basic (at best) and many sufferers of this disorder have gone through most of the trials described by many of you over there.
We are searching for anything that we can use to inform her health care people of just what she's going through.
I attend her medical appointments, to help her explain what happens to her during the times that occur in between.
Currently, her symptoms include violent shaking, loss of stability, migraines, pain in the chest, dysrythmia and inability to commmunicate.
She feels lost and gets depressed when this happens - totally understandable.
Any help will be greatly appreciated.