Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for February 2012

does anybody else have hair loss?

its coming out at the roots again, it grows back because i have tufty bits of hair at the top of my head were the regrowth is but its just started to happen...

its coming out at the roots again, it grows back because i have tufty bits of ha...

emmaj

•12 years ago

15 Replies

Anaemia still there so haemo wants test for cancer. OMG

I just cannot believe this. I got sent to haemo as I wanted to change from warfarin to fragmin. My GP was scared so sent me to haemo. She said as I was pale...

I just cannot believe this. I got sent to haemo as I wanted to change from warfa...

Jade

•12 years ago

2 Replies

A nice song !! x

Here's a nice song for you all.....about support & keeping strong :) Yep dont worry it's not one of my usual songs! (Metallica, Black Veil Brides or...

Here's a nice song for you all.....about support & keeping strong :) Yep ...

Suzypawz

•12 years ago

10 Replies

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Anyone have restless leg syndrome with APS

I have been diagnosed with APS and am trying to connect the dots on a lot of symptoms so wondered if anyone else suffers with heavy twitchy restless leg...

I have been diagnosed with APS and am trying to connect the dots on a lot of sym...

xxtracyxx

•12 years ago

16 Replies

Anyone taken amoxicilin (antibiotics) while on warfarin? just wondering how it might affect my INR levels?

JMA_10

•12 years ago

5 Replies

Atrial Fibrillation - pleurisy, pleurisy pain

Hi all, not sure if this is a moan, bit scared or generally in need of getting things off my chest - no pun intended! I suffer paroxysmal AF (periodic...

Hi all, not sure if this is a moan, bit scared or generally in need of getti...

Lesley_D

•12 years ago

11 Replies

does anyone know dr. tom greco in connecticut..usa??

just wondering if anyone heard of him..

happee1

•12 years ago

6 Replies

Bruises

My turn lol I have about 50 small black bruises on the front of my thighes they are a bit smaller than the end of a pencil any Ideas x

My turn lol I have about 50 small black bruises on the front of my thighes they...

taffydaffy

•12 years ago

9 Replies

Blood test, blood spots and rashes

i few weeks ago i told you about the red blood spots i have and rash, well my doctor did a blood test for clotting and it should have come back between 25-31...

i few weeks ago i told you about the red blood spots i have and rash, well my do...

christinebonner

•12 years ago

10 Replies

No upper body strength .... pains in shoulders?

I have been diagnosed with Hughes Syndrome about 13 years ago, when I was pregrant with my 2nd child. I had three miscarriages before this and this is how they...

I have been diagnosed with Hughes Syndrome about 13 years ago, when I was pregra...

Julieanne

•12 years ago

20 Replies

Does Nick Cannon have Hughe's Syndrome?

Check out this article... What he is describing is Hughe's syndrome/APS by the sounds of it! First kidney issues, then multiple clots in his lungs?? (...

Check out this article... What he is describing is Hughe's syndrome/APS by the s...

Hidden

•12 years ago

7 Replies

visual disturbance light headed then unequal pupil... indicative of TIA but am on warfarin!!! to see neurologist...

Hi Guys, Not been on here much lately have been working hard also doing my training with p trainer all was going well but still weight not budging!! had...

Hi Guys, Not been on here much lately have been working hard also doing my tr...

kathyD64

•12 years ago

15 Replies

Twitter Fame! Celebrity support at last :)

We joined up with Twitter last week thanks to our volunteer Beth Willis who is now proficient in the ways of Tweeting. We have already had some support in...

We joined up with Twitter last week thanks to our volunteer Beth Willis who is n...

Hidden

•12 years ago

14 Replies

off to dartmouth

got a call yesterday late afternoon- my march apointment has been moved up to this morning [HORRAY] they will be doing E.M.G.- from neck by spine, both arms...

got a call yesterday late afternoon- my march apointment has been moved up to th...

jetjetjet

•12 years ago

23 Replies

variations in inr readings

Have been feeling pretty awful the last few days so last night tested my inr which read 2.9. Then remembered I was due to call the clinic today so re-tested...

Have been feeling pretty awful the last few days so last night tested my inr whi...

panda60

•12 years ago

1 Reply

soz not been around recently, I am still 'hanging' in there!!

Hi to all, soz not been around for a while :( missed you all, I've looked in every now & then & checked in on you :) I hear you're missing me jet !! ;) I'm...

Hi to all, soz not been around for a while :( missed you all, I've looked in eve...

Suzypawz

•12 years ago

22 Replies

Vitamin D

After my recent evaluation, my Rheumy's office called and told me I was low in Vitamin D and suggested I begin supplementation. Is the Vitamin D thing...

After my recent evaluation, my Rheumy's office called and told me I was low in V...

wojorox

•12 years ago

6 Replies

Low dose aspirin with Coumadin?

I am having a problem with keeping my INR at an acceptable (to me) level. My GP is satisfied with it being at 1.4, while my rheumy suggests between 3 and 3.5....

I am having a problem with keeping my INR at an acceptable (to me) level. My GP...

wojorox

•12 years ago

9 Replies

Does anyone know if dabigatran anticoagulant would be used on lupus/APS patients, if unable to tolerate warfarin?

kaysie

•12 years ago

6 Replies

RHEUMATOLOGY

Hi All, Just wondered if anyone can help i have my first Rheumy appointment end of Feb i was diagnosed with APS 2004 but feel i have been left in the system...

Hi All, Just wondered if anyone can help i have my first Rheumy appointment end...

Hidden

•12 years ago

8 Replies

Ugggh!! Another PE!

Well it's looking like Fragmin for life (or similar LMWH) for me now. No more denial for me- APS has once again slapped my hand hard. Started feeling really...

Well it's looking like Fragmin for life (or similar LMWH) for me now. No more de...

Hidden

•12 years ago

12 Replies

I do love half term!

So, I've got a week off at last, I love half term. I'm enjoying it so far. I don't want to whinge, I'm fine and happy and well enough at the moment and off to...

So, I've got a week off at last, I love half term. I'm enjoying it so far. I don...

Tannyah

•12 years ago

13 Replies

Is anyone on Rituximab and Coumadin ???

Karenj

•12 years ago

11 Replies

This should be interesting...

I have been on incapacity benefit for 10 years since I had to give up my teaching job. Have filled in the forms every so often, never been asked to see a...

I have been on incapacity benefit for 10 years since I had to give up my teachin...

panda60

•12 years ago

7 Replies

feeling low

feeling fed up today ...dont know why but today is one of those days when even i cant hide my pain from myself let alone anyone else..... i hate having...

feeling fed up today ...dont know why but today is one of those days when even i...

lollierai

•12 years ago

7 Replies

i just dont get it

i have range 3-4 when i get below 3.3 its like im a different person headaches pains, snappy asked consultant to higher range and he said carnt but then told...

i have range 3-4 when i get below 3.3 its like im a different person headaches ...

roymelt

•12 years ago

5 Replies

Allergic to skin

Hi guys I know there have been questions about this before but I have to confess, as it didn't affect me I didn't read too much - sorry. However my mum,...

Hi guys I know there have been questions about this before but I have to conf...

Hidden

•12 years ago

3 Replies

Clexane injection as well as Warfarin

I am on Clexane and wonder when to take, as wasnt told, I take it a night time after Warfarin, but only been told to take if INR drops. Does it make a...

I am on Clexane and wonder when to take, as wasnt told, I take it a night time a...

daisy11

•12 years ago

5 Replies

TRAVELLING UP TO ST T FROM SOUTH WEST

Hello, I am now a regular visitor at St T and wonder if there alternative ways to get to the hospital. Other than train and coach. Last visit I was not well...

Hello, I am now a regular visitor at St T and wonder if there alternative ways ...

daisy11

•12 years ago

12 Replies

Thanks for caring!

I would like to express my thanks to the partners and carers of all our APS patients. I thought about it for a while and realised how special,you must be....

I would like to express my thanks to the partners and carers of all our APS pati...

WayneL

•12 years ago

6 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for February 2012

does anybody else have hair loss?

Anaemia still there so haemo wants test for cancer. OMG

A nice song !! x

Anyone have restless leg syndrome with APS

Anyone taken amoxicilin (antibiotics) while on warfarin? just wondering how it might affect my INR levels?

Atrial Fibrillation - pleurisy, pleurisy pain

does anyone know dr. tom greco in connecticut..usa??

Bruises

Blood test, blood spots and rashes

No upper body strength .... pains in shoulders?

Does Nick Cannon have Hughe's Syndrome?

visual disturbance light headed then unequal pupil... indicative of TIA but am on warfarin!!! to see neurologist...

Twitter Fame! Celebrity support at last :)

off to dartmouth

variations in inr readings

soz not been around recently, I am still 'hanging' in there!!

Vitamin D

Low dose aspirin with Coumadin?

Does anyone know if dabigatran anticoagulant would be used on lupus/APS patients, if unable to tolerate warfarin?

RHEUMATOLOGY

Ugggh!! Another PE!

I do love half term!

Is anyone on Rituximab and Coumadin ???

This should be interesting...

feeling low

i just dont get it

Allergic to skin

Clexane injection as well as Warfarin

TRAVELLING UP TO ST T FROM SOUTH WEST

Thanks for caring!

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