Does anyone have Temporal Arteritis? If u do, how is it treated? Thanks

[quickchick]

[LesJames]

Hi,

I have temporal arteritis and it is treated with steroids, once you are on them you will feel some relief within days. I would advise you to see your doctor, with some urgency because if it is Temporal Arteritis it can affect your vision, which could be irreversible.

Take care

[MaryF Administrator]

Hi there, this is a fairly straight forward link for you. Best of luck with getting some help with this. Mary F x

nhs.uk/Conditions/giant-cel...

[Jade]

My Dad had it about 14 years ago it was treated with strong steriods for a full year, after which he has had no trouble at all. I understand treatment is vital to save sight.

[norris]

I have Temporal Arteritis, I am being treated with large dose Steriods, but they causing big problems, Legs and arms numb, lost sight, out of control diabetes. 3 teeth have crumbled, taste buds very strange, bruises,insominia, then I fall asleep suddenly for 30 mins at a time, swollen ankles, Very large Moon face. Leg weakness. Urine infection, loose stools, everyday something seems to happen, they tried to lower the dose but pain came back and the viscosity shot up, so now they put the steriod back up and started me on Aziothiaprine, it will increase as the steriods come down, but that has side effects as well, I will just have to see, I know I am in for the long haul and will have to take it day by day. The sight is the most important thing, they are keeping a regular review of that and if no improvement by 6 months I will have a steriod implant in my eye. But the eye is caused by the HUghes. I have to take stomach protective tabs, and bone tabs as well as calcium Vd and I take magnesium for cramps. I have been told I will feel much better in 6 months time , I started treament, roll on May. The pains in my head did go as soon as started the Steriods, but I did not have pain in my Temples only my head, but on biopsy it was confirmed it was Termporal Artritis. But I remain positive, I didn't have a stroke and my brain has not got any lesions or blockages. My friends and family get more upset than me because, they see the drastic change in me, but I remain positive and know this is only a bad time that I will get through, I have done it in the past. My Sister in law has cancer and things don't look good for her so how can I be down.

[SharontheSheep]

Bless you for being so positive. It's that attitude that will get you through this. I have cerebral vasculitis that flares up periodically leaving me thinking I have dementia! I get dreadfully blurred vision then but my eye guy, who seems well up on APS, says it's micro clots + I need more anti co-ag but St Thomas disagree. I do have lesions and the resulting cognitive/episodes. I was once treated with large dose steroids for 7 days for a persistent migraine and that made me really ill (as do cortisone injections) so I empathise with you being on them for all that time.

You are quite inspiring norris. I wish you the very best

love Sharon x