I have blood test every 90 days/per my Rheumatologist. APS and Unspecified Connective Tissue Disorder. Not sure which ones are for APS so I am including all: Any comments? Is evergthing covered?
Welcome to the group. I hope the below helps i am not sure but i will check and see what else i can find
Paddy
The blood tests for Hughes Syndrome have complicated names but are essentially simple and universally available through your doctor/GP. There are two tests – anticardiolipin antibodies and the confusingly named lupus anticoagulant.*
Screening test for Hughes Syndrome
Anticardiolipin Antibodies (aCL) YES sometimes referred to as Antiphospholipid
positive in 80% of cases
higher levels = higher risk of thrombosis
Lupus Anticoagulant (LA) YES Positive in 30-40% of cases
Cannot be used if patient is on warfarin
* The confusing term ‘lupus anticoagulant’ should be done away with. It is NOT a test for Lupus and is NOT an anticoagulant. But it is a historical term, and so far has stuck. Confusion is added to by the variety of clotting tests used in different laboratories with abbreviations including KCT, KCCT, DRVVT and so on. A topic best left to the haematologists.
Of these two tests, the first is far more important and more frequently positive – but because nature can be awkward, some patients have only one or other test positive – hence the need to test for both. Having said this, we do see some patients who appear to have Hughes Syndrome in whom both tests are negative.
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