I am feeling pretty awful, the amount of pain i feel daily is increasing and im stuggling to cope which in turn makes me feel a bit low. About 14 yrs ago i was diagnosed with APS whilst i was attending the Rheumatologist for help with Athritis pain. He recommended i take low dose aspirin for life, well it turned out i wasnt able to take them as they caused me to have bad tummy problems, which i already took medication for. So for the next 13 yrs i took nothing to thin my blood or see anyone about the problems. well apart from my old GP who give me no answers.
About 10 months ago we had a new Gp in our health centre, i went along to visit her as i was having a bad time of it with worsening pain and memory loss which i hadnt realised was a symptom until very recently. Long story short i spoke to new Gp and she refered me to a Rheumotologist. He put me on plavex, took bloods and told me come back in 12 weeks which is now going on about 20 weeks, anyway i do have an appointment for this friday at last.
So much for monitoring my bloods haha big joke. Anyway when i did visit him for the first time he examined me and told me i had fibromyalgia as well, which explained a lot to me as i had been so unwell with no explanation for many years. What i would like to ask though is, firstly does hughes syndrome cause pain and discomfort similar to the fibromyalgia, or is it the fibromyalgia that has been causing my pain and discomfort and memory loss problems all along, sorry this is so long i took days to post this as wasnt sure how to explain but decided i would just write it as i felt it is affecting me, thanks for reading this. love Monica xxx