Well just gets so confusing, I and family history of APS with strokes etc and after my op in March I mentioned to the local Haem team that I was worried being not on aspirin, as I had been on this for a number of years, they were going to get back to me, but they didn't until too late when suffered from TIA and then put on Clop and 3 weeks later Warfarin/ I have been referred to St Thoms and 2nd visit in January, my daughter diagnosed in 2000 and she has been on Aspirin as our Paediatrician had time and patience to go through her notes and found a letter saying she should be on Aspirin. However her rheum sent us a letter today saying that the Haem who I see said not to bother with Aspirin, but in light of them not taking me serious months ago, reluctant for her to come off it as she suffers from headaches etc also the doctor in London said she should come up in New Year and asked if she was on Aspirin.; We are seeing Rheum tomorrow and we are going to say not happy with Haem. I just do not want my daughter to go through what I am going through especially as she is doing A levels and stress.
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