Posts - PSP Association | HealthUnlocked

PSP Association

9,559 members • 11,523 posts

All posts for January 2018

lights over lapland heading to Tromso by boat

https://youtu.be/XIeoWkGW09A

https://youtu.be/XIeoWkGW09A

•7 years ago

Seizure

On Sunday mum was having mini seizures and was unresponsive most of the time from 10.00 - 3.30. She then woke up and asked what's for tea. Hospital done all...

On Sunday mum was having mini seizures and was unresponsive most of the time fro...

•7 years ago

OK! Guilt trips over!!!

Name one good thing that you did/are doing for your loved one????? Mine, I stayed as positive as I could and encouraged him do all the exercises that I am sure...

Name one good thing that you did/are doing for your loved one????? Mine, I staye...

•7 years ago

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A YEAR TODAY

Today was a year since Don died. Did I ever mention that he and our daughter died on the same day 30 years apart ? I am hurting so badly. The picture was...

Today was a year since Don died. Did I ever mention that he and our daughter die...

•7 years ago

Two types of PSP

Does anyone have data on a PSP of rapid progress and a slow one? The fast one ends in dementia and the slow PSP mainly affects the physical ones.

Does anyone have data on a PSP of rapid progress and a slow one? The fast one e...

•7 years ago

A quote from Orlando Batista,

"The greatest weakness of most humans is their _hesitancy_ to tell others how much they love them while they're alive." — Orlando A. Battista I do not think...

"The greatest weakness of most humans is their _hesitancy_ to tell others how mu...

•7 years ago

My sister is still "in there"...

Jan 21, 2018 This morning Melissa woke me up at 4:00am - I couldn’t believe she was up so early – she had talked to her “hallucinatory people” until almost...

Jan 21, 2018 This morning Melissa woke me up at 4:00am - I couldn’t believe ...

•7 years ago

IT’S OVER

Listening to Roy Orbison, The Four Seasons , Buddy Holly, Brass Band and Classical music on Thursday and Friday at the Nursing Home. Some of B’s favourites. He...

Listening to Roy Orbison, The Four Seasons , Buddy Holly, Brass Band and Classic...

•7 years ago

Sighing - Good visit today

Liz has a chest infection. It's not serious and the Nursing Home are doing a fantastic job at dealing with it. I dragged myself into the home today expecting...

Liz has a chest infection. It's not serious and the Nursing Home are doing a fan...

•7 years ago

Went to a party today........

Rowenna was 4 today, one of my 7 grandchildren. Luckily my right arm can still hold a camera and give me some wonderful memories to keep. Home and tired...

Rowenna was 4 today, one of my 7 grandchildren. Luckily my right arm can still...

•7 years ago

Following up on PSP?

Just curious if any of you caregivers are following the journey of PSP with a daily diary? I've written down things on lots of pieces of paper when I hear...

Just curious if any of you caregivers are following the journey of PSP with a da...

•7 years ago

Back ache

I have had back ache for a week plus. Been for a massage which didn't seem to help. Is it likely it's PSP-related?

I have had back ache for a week plus. Been for a massage which didn't seem to h...

•7 years ago

Crisis time

Mum having 'conversation' with invisible. Now not able to feed herself as ends up on the floor or else where. Doctors say no infections just psp progressing....

Mum having 'conversation' with invisible. Now not able to feed herself as ends ...

•7 years ago

CBD

Hi - My name is Brenda and I was diagnosed with CBD in 2015. I’m experiencing quite a number of issues and am wondering if anyone else is dealing with this...

Hi - My name is Brenda and I was diagnosed with CBD in 2015. I’m experiencing q...

•7 years ago

Grieving is so hard

Hi folks. I am hoping that I can get some advice on coping. I lost my wonderful husband on 29 November 2017 and I am going through hell. Les and I were sitting...

Hi folks. I am hoping that I can get some advice on coping. I lost my wonderful ...

•7 years ago

mobility outdoors

just bought a 4 wheel pushalong to get outside safely thinking about buying an electric wheelchair--anyone with advice on this ?

just bought a 4 wheel pushalong to get outside safely thinking about buying an...

•7 years ago

Waiving at you jillanf6 :)

Hi jillanf6 Good to see you are still here. Waiving and smiling at you Warmly Kevin xx

Hi jillanf6 Good to see you are still here. Waiving and smiling at you Warmly...

•7 years ago

We are experiencing the end of life but the beginning can have it's problems........

My eldest daughter Emily made this documentary shown last night on BBC Wales...... If you can find the time to watch it you will see women who have had to...

My eldest daughter Emily made this documentary shown last night on BBC Wales.......

•7 years ago

Logging out🤔

Once again , I cannot locate a " logout " I hate feeling dumb, but where's the logout button - I don't have 5 minutes to look every time. I used to just tap my...

Once again , I cannot locate a " logout " I hate feeling dumb, but where's the l...

•7 years ago

Where do I go to get support?

Hi I am new to this forum and I have been reading this afternoon bits and pieces and found it quite useful. I am the carer for my partner who has had...

Hi I am new to this forum and I have been reading this afternoon bits and pieces...

•7 years ago

Lost the Battle

We finally lost the battle with PSP. My mum passed away peacefully over the weekend. She passed away in the afternoon and according to Islamic practice was...

We finally lost the battle with PSP. My mum passed away peacefully over the week...

•7 years ago

Hummingbird

I have just been made aware of the hummingbird sign that can show up on a brain scan. I am fascinated about it I’ve not heard of it before. I don’t know if DC...

I have just been made aware of the hummingbird sign that can show up on a brain ...

•7 years ago

Chc victory!

I wrote on here a few weeks ago asking for advice on chc reviews. I thank all for the advice I recieved with special thanks to Amanda who's help came through...

I wrote on here a few weeks ago asking for advice on chc reviews. I thank all fo...

•7 years ago

Spoke too soon

I just responded to a post last week about my dad's run of good luck with not having a UTI in one full year. It appears his luck has run out. He has a UTI....

I just responded to a post last week about my dad's run of good luck with not ha...

•7 years ago

PSP on television show

Tuesday night 1-16-2018, here in the US, the television show, "Chicago Med" had a story with a woman patient and she had "PSP". This really surprised me as I...

Tuesday night 1-16-2018, here in the US, the television show, "Chicago Med" had ...

•7 years ago

Part two

Sorry it's sideways.

Sorry it's sideways.

•7 years ago

Brief info on PSP for informing others.

This is the card. I'll send the other side.

This is the card. I'll send the other side.

•7 years ago

Assisted living even possible?

Has anyone been able to find an assisted living situation with enough assistance to allow someone who is a 2 person transfer with a sit to stand lift to stay...

Has anyone been able to find an assisted living situation with enough assistance...

•7 years ago

Chicago Med episode

Watching, my favorite tv show, Chicago Med, when low and behold a patient comes into the E.R. with a chest infection from here PSP. It is a fictional show but...

Watching, my favorite tv show, Chicago Med, when low and behold a patient comes ...

•7 years ago

Heartbroken

My mother who has psp has a chest infection and hasn't responded to treatment her potassium level dropped to 2.6 normal is 4 and were giving her chewable...

My mother who has psp has a chest infection and hasn't responded to treatment he...

•7 years ago

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