Posts - PSP Association | HealthUnlocked

PSP Association

9,559 members • 11,523 posts

All posts for September 2024

CHC funding review

My husband was awarded CHC funding on discharge from hospital in July. I've just had a phone call to say it is due for review - which I was expecting as I...

My husband was awarded CHC funding on discharge from hospital in July. I've ju...

SunriseLegend

•1 day ago

11 Replies

Awareness of PSP and CBD your contributions

Further to my previous posting regarding awareness of PSP, and the large volume of positive feedback might I suggest the following to anyone interested in...

Further to my previous posting regarding awareness of PSP, and the large volume ...

autex2000

•2 days ago

2 Replies

PEG Feed for the latter stages of PSP?

It is difficult to know for sure with this terrible illness, but I would say that my husband is entering the latter stages of PSP. He has no mobility, very...

It is difficult to know for sure with this terrible illness, but I would say tha...

JAK63

•3 days ago

11 Replies

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PSP eye problems

I guess I should have mentioned we are in the US in state of Oklahoma and getting appointment for neurologist is next to impossible as the few we have say they...

I guess I should have mentioned we are in the US in state of Oklahoma and gettin...

ajsimon8781

•3 days ago

5 Replies

PSP eye problems

Hi, caring for my mom with PSP and our best guess is it started about 4 years ago with several falls, losing ability to take care of her and dads business...

Hi, caring for my mom with PSP and our best guess is it started about 4 years ag...

ajsimon8781

•4 days ago

14 Replies

dropped Head

My husband is in an advanced state of PSP and struggling on all fronts including mobility, vision, swallowing (now PEG fed) and communication. Recently, PSP...

My husband is in an advanced state of PSP and struggling on all fronts including...

Joanne19

•6 days ago

1 Reply

Dropped Head

My husband is in an advanced state of PSP and struggling on all fronts including mobility, vision, swallowing (now PEG fed) and communication. Recently, PSP...

My husband is in an advanced state of PSP and struggling on all fronts including...

Joanne19

•6 days ago

Be the first to reply

Dropped Head

My husband is in an advanced state of PSP and struggling on all fronts including mobility, vision, swallowing (now PEG fed) and communication. Recently, PSP...

My husband is in an advanced state of PSP and struggling on all fronts including...

Joanne19

•6 days ago

16 Replies

Dropped Head

My husband is in an advanced state of PSP and struggling on all fronts including mobility, vision,, swallowing (now PEG fed) and communication. Recently PSP...

My husband is in an advanced state of PSP and struggling on all fronts including...

Joanne19

•6 days ago

Be the first to reply

Dropped Head

My husband is in an advanced state of PSP and struggling on all fronts including mobility, vision,, swallowing (now PEG fed) and communication. Recently PSP...

My husband is in an advanced state of PSP and struggling on all fronts including...

Joanne19

•6 days ago

Be the first to reply

Advanced CBD and hallucinations

My mum has CBD and is now mostly in bed in her nursing home because moving and sitting up brings on pain. She has no ability left to move her limbs but still...

My mum has CBD and is now mostly in bed in her nursing home because moving and s...

zorro1

•6 days ago

6 Replies

Dad’s 8 year PSP journey at its end

My father was diagnosed with PSP in 2016 .. which was post a few backward falls .. I had noticed a few changes besides balance issues like not blinking for...

My father was diagnosed with PSP in 2016 .. which was post a few backward falls ...

Dravid100

•10 days ago

25 Replies

Awareness of PSP

Having lost my wife earlier this year with this terrible disease, and watching this collection of tragic stories and cries for help over the months before and...

Having lost my wife earlier this year with this terrible disease, and watching t...

autex2000

•10 days ago

22 Replies

Liquid Stool

Good morning, fellow travelers on this horrid journey! My husband was diagnosed with CBD about 5 years ago. He is now bed bound, can barely speak and requires...

Good morning, fellow travelers on this horrid journey! My husband was diagnosed...

Indiana-Girl

•12 days ago

7 Replies

Struggling

My husband had been experiencing various problems for some years including limbs on his left side feeling strange, gradual problems with speech, falls,...

My husband had been experiencing various problems for some years including limbs...

Big_band_music

•12 days ago

15 Replies

I am Maria

hi there ! Ian Maria Hipolito’s and was a nurse by professio I am a Filipino but presently residing at 113 Fordham Road,Ford estate,Sunderland, was recently...

hi there ! Ian Maria Hipolito’s and was a nurse by professio I am a Filipino but...

Adobongbaboy

•14 days ago

5 Replies

Goodbye

Just an update on mum. She finally passed peacefully on 27th Aug 2024. A courageous battle until the end. We are in awe of her. I'm heartbroken by her journey....

Just an update on mum. She finally passed peacefully on 27th Aug 2024. A courage...

MRSYafffle

•15 days ago

17 Replies

Advice re respite care - Chorley/Wigan area

My husband (59) has mid-stage PSP ( diagnosed May 21, fully wheelchair bound and fairly severe speech/eating issues) We've been awarded some funding for...

My husband (59) has mid-stage PSP ( diagnosed May 21, fully wheelchair bound an...

Vraic

•15 days ago

12 Replies

Care options? - Refused CHC - dad cares for mum 24/7.

Hi there, this is my first post here... My mother was diagnosed with PSP in 2021, and in 2022 she fell and broke her hip. After a series of botched operations...

Hi there, this is my first post here... My mother was diagnosed with PSP in 202...

Neffian

•16 days ago

12 Replies

final phase

hello, my husband is now in the hospital, on oxygen and what seems endless antibiotic’s. They have told us that he is nearing the end, he keeps having spasms...

hello, my husband is now in the hospital, on oxygen and what seems endless antib...

Purp23

•16 days ago

7 Replies

CBD and Seizures

Hi, I witnessed my mum having a seizure yesterday eve which is the most scary experience I have had. Mum was in bed, I had just administered her meds and went...

Hi, I witnessed my mum having a seizure yesterday eve which is the most scary e...

bichonbear1

•17 days ago

18 Replies

Mom Recently Diagnosed 😢 Wondering about Speech Cloning/Voice Banking

Hello everyone. My mom was diagnosed with PSP on May 31st of this year but has been experiencing symptoms for about two and a half years now. She is only 56...

Hello everyone. My mom was diagnosed with PSP on May 31st of this year but has b...

ThankfulFish

•19 days ago

7 Replies

Group - West Yorkshire ?

is there a group in/near Halifax, West Yorkshire? Anyone interested in starting one?

is there a group in/near Halifax, West Yorkshire? Anyone interested in starting ...

Diggerandsam

•19 days ago

10 Replies

Asking for your stories and help

Hi, I'm new here. Yesterday, after 2 years of searching, my 75-year-old mother was finally diagnosed. We are from Poland, where there is no other treatment...

Hi, I'm new here. Yesterday, after 2 years of searching, my 75-year-old mother w...

garucha

•20 days ago

13 Replies

Just a rant

Dear All, I apologise now for the rant, but I'm so frustrated. I finally managed to get Mum's nursing home to complete a Continuing Healthcare Checklist in...

Dear All, I apologise now for the rant, but I'm so frustrated. I finally manag...

GeorgeMMXVI

•21 days ago

6 Replies

How do I save posts in Health Unlocked?

How do I save posts in Health Unlocked? I've searched 'Help' but there is nothing there. It's obvious how to retrieve saved post, but not obvious how to save...

How do I save posts in Health Unlocked? I've searched 'Help' but there is nothin...

MullerRice

•23 days ago

6 Replies

PSP and care homes

Hi everyone, I have been a member of this site for a year now and read the posts regulary, taking great advice and comfort from you all. My 67 year old mum has...

Hi everyone, I have been a member of this site for a year now and read the posts...

Emma-C

•23 days ago

7 Replies

My husband lost his fight

Our journey with PSP has been brief .. compared to many on here. From symptoms showing up to passing I would estimate 4 years. Diagnosed in May 2023 after a...

Our journey with PSP has been brief .. compared to many on here. From symptoms...

Sun-flowerwearer

•24 days ago

40 Replies

Increased Tremors

The tremors in my husbands right arm are becoming more frequent and whilst I try to stop the shaking by placing my hand on his arm they start again which is...

The tremors in my husbands right arm are becoming more frequent and whilst I try...

Licquoricelover

•24 days ago

5 Replies

Have you got Respect Form/Palliative Care in place?

Hi all, I haven't posted for a while, although I have been reading the posts regularly and send my deepest condolescences to all loved ones who have passed...

Hi all, I haven't posted for a while, although I have been reading the posts reg...

Loveispatient23

•25 days ago

3 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for September 2024

CHC funding review

Awareness of PSP and CBD your contributions

PEG Feed for the latter stages of PSP?

PSP eye problems

PSP eye problems

dropped Head

Dropped Head

Dropped Head

Dropped Head

Dropped Head

Advanced CBD and hallucinations

Dad’s 8 year PSP journey at its end

Awareness of PSP

Liquid Stool

Struggling

I am Maria

Goodbye

Advice re respite care - Chorley/Wigan area

Care options? - Refused CHC - dad cares for mum 24/7.

final phase

CBD and Seizures

Mom Recently Diagnosed 😢 Wondering about Speech Cloning/Voice Banking

Group - West Yorkshire ?

Asking for your stories and help

Just a rant

How do I save posts in Health Unlocked?

PSP and care homes

My husband lost his fight

Increased Tremors

Have you got Respect Form/Palliative Care in place?

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive