Posts - PSP Association | HealthUnlocked

PSP Association

9,559 members • 11,523 posts

All posts for January 2018

Secretions and Saliva

Mum is deteriorating fast. She is end stage with a peg, sleeping 24hrs. We're having serious problems with secretions, saliva and moaning. Suction is taking...

Mum is deteriorating fast. She is end stage with a peg, sleeping 24hrs. We're ha...

•7 years ago

Tremors at night?

Fred has started having what seems to be a full body tremor in his sleep. It's happened the past 2 nights and it doesn't wake him up. It first happened a...

Fred has started having what seems to be a full body tremor in his sleep. It's h...

•7 years ago

Head Support Advice Sought

Hi folks Liz can no longer keep her head upright and she is forever looking down. Has anyone got experience of using something to keep the head looking...

Hi folks Liz can no longer keep her head upright and she is forever looking down...

•7 years ago

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My "digital" communication device

Necessary elements: - A music stand. - A plasticized alphabet. - The vowels reinforced in different colors. - A laser. - A blackboard and a marker for the...

Necessary elements: - A music stand. - A plasticized alphabet. - The vowels rein...

LuisRodicioRodicio

•7 years ago

Stages of PSP and standards of care_v1

I think having a PSP disease roadmap, even if it is rough, can be useful. The idea and the bulk of the information that I show below I have found in the...

I think having a PSP disease roadmap, even if it is rough, can be useful. The id...

LuisRodicioRodicio

•7 years ago

Amantadine

In a Post by Satt2015, he attached a video. In it the doctor spoke of a patient getting results from Amantadine. The same patient tried Carbidopa-Levidopa...

In a Post by Satt2015, he attached a video. In it the doctor spoke of a patient ...

•7 years ago

Medicine Carousel

We are trying different medicines, taking some away and adding new ones. It's a scary thing because we never know how they will react. Charles doesn't even...

We are trying different medicines, taking some away and adding new ones. It's a...

•7 years ago

communication devices......

assessment with neuropsychologist this morning....oh appts are so depressing. anyway dad as we know is having significant word finding difficulties but we're...

assessment with neuropsychologist this morning....oh appts are so depressing. an...

•7 years ago

Help

My mother has PSP and is about 2-3yrs in. She is in Assisted living as her body is failing before her mind. She is starting to get very childlike, and very...

My mother has PSP and is about 2-3yrs in. She is in Assisted living as her body...

•7 years ago

Major changes

Warning long post! In the past 2 months there have been major changes. My husband has taken a major down turn according to the doctors. He went from being...

Warning long post! In the past 2 months there have been major changes. My husba...

•7 years ago

Raising money for CBD and PSP

https://www.justgiving.com/Keira-Murphy1?utm_source=Sharethis&utm_medium=fundraisingpage&utm_content=Keira-Murphy1&utm_campaign=pfp-email&utm_term=gZgg2kneW....

https://www.justgiving.com/Keira-Murphy1?utm_source=Sharethis&utm_medium=fundrai...

•7 years ago

My first post

This is my first post I actually posted on someone else’s thread so sorry! Well here goes my name is Marion. I am from Scotland. I am going to try and...

This is my first post I actually posted on someone else’s thread so sorry! Well...

•7 years ago

First post. Happy 2018

My mother in law was diagnosed with PSP almost two years ago (Parkinsonism was the first attempt)... in her words, she feels like a Lab rat!! She’s now, again,...

My mother in law was diagnosed with PSP almost two years ago (Parkinsonism was t...

•7 years ago

Tears From Heaven

Yesterday was my hubby’s funeral which was attended by family and a few friends. We followed hubby’s coffin into the chapel with Frank Sinatra singing My Way...

Yesterday was my hubby’s funeral which was attended by family and a few friends....

•7 years ago

wednesday morning 4am

those familiar with early simon and garfunkel will recognise the title :)) I was recently diagnosed with PSP after 2yrs as a Parkinson patient; after...

those familiar with early simon and garfunkel will recognise the title :)) I w...

•7 years ago

Swollen feet and lower legs

My husband has been diagnosed with psp for about 14 months. He has swollen feet and lower legs. Is this common? His primary care did blood work and his...

My husband has been diagnosed with psp for about 14 months. He has swollen feet...

•7 years ago

Thank you all and good wishes for 2018

To all of you on this New Year's day: I am a member of this community for 6 months now; It is six months since my darling wife received her PSP DX and 6 months...

To all of you on this New Year's day: I am a member of this community for 6 mont...

•7 years ago

First-timer saying hello

Hello Everyone! I am from Poland, I am 27 and I take care of my mon who has been diagnosed with PSP last year (first symptomps occured 7 years ago). I am very...

Hello Everyone! I am from Poland, I am 27 and I take care of my mon who has been...

•7 years ago

KIND WORDS FOR Kevin_1

Dear Kevin, The site would not me click on your so very kind words for me. Went to sleep crying last night for the first time in a very long time, Wishing you...

Dear Kevin, The site would not me click on your so very kind words for me. Went ...

•7 years ago

Alternative to Hoyer lift

Dan is suddenly having a hard time putting his legs down to stand or transfer. Yesterday even our two strong sons could not hold him up to transfer him from...

Dan is suddenly having a hard time putting his legs down to stand or transfer. ...

•7 years ago

Advances in the treatment for Alzheimer's

Hi folks I came across this today. It's a development in the treatment of Alzheimer's. There are crossovers between PSP and Alzheimer's such as neurofibular...

Hi folks I came across this today. It's a development in the treatment of Alzhei...

•7 years ago

Some defiant music for us

https://m.youtube.com/watch?v=YgHQZGHzEIs I hope you all can see this, it is good for stomping to! A bit of auld Lang syne in a way.

https://m.youtube.com/watch?v=YgHQZGHzEIs I hope you all can see this, it is go...

•7 years ago

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