Posts - PSP Association | HealthUnlocked

PSP Association

9,559 members • 11,523 posts

All posts for January 2018

Falling but otherwise mobile: Equipment/Support suggestions?

Hubby can walk (slowly) and get up and down from chairs, but is starting to fall more. There's a tumble every day now. We have a rollator walker for outside...

Hubby can walk (slowly) and get up and down from chairs, but is starting to fall...

•7 years ago

Just a little sunshine

For those who have recently arrived on this site you may wonder what this bloke is doing writing about things which have nothing to do with PSP but I can...

For those who have recently arrived on this site you may wonder what this blo...

•7 years ago

hypersexuality

my partner has psp and is expressing signs of hypersexuality- I am struggling with this .any ideas are welcome.

my partner has psp and is expressing signs of hypersexuality- I am struggling wi...

•7 years ago

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Should I be scared Rebound improvements

Neil is having a great day,I have not seen him like this in a year +. He got himself out of his recliner chair,which is no easy task and pass me and onto the...

Neil is having a great day,I have not seen him like this in a year +. He got him...

•7 years ago

midnight sun - take

a video of the midnight sun taken on my smartphone late august 2017 edited in form of a de Kooning painting with soundtrack inspired by john cage and stevie...

a video of the midnight sun taken on my smartphone late august 2017 edited in fo...

•7 years ago

Christ mass

A picture to cheer us tjlhrouugh bleak midwinter daysa celebration of trees in our church

A picture to cheer us tjlhrouugh bleak midwinter daysa celebration of trees in o...

•7 years ago

Food challenges with PSP

Hi, am Lydia and my mom has PSP from 2015. I have been reading about this illness and can see the changes in my mom's condition as described. I would like to...

Hi, am Lydia and my mom has PSP from 2015. I have been reading about this illnes...

•7 years ago

Thank you!

Thank you all! Words cannot express the gratitude I have for each and every one of you for your kind replies to my post. I am so thankful for a place where I...

Thank you all! Words cannot express the gratitude I have for each and every one ...

•7 years ago

Despair

Oh my goodness I am overwhelmed with all of the lovely informative messages. I can't thank you all enough I feel like I am part of a great big family I can...

Oh my goodness I am overwhelmed with all of the lovely informative messages. I c...

•7 years ago

Tom’s Disease !!

I have been diagnosed in 2011. My doc did an initial diagnosis of Parkinson’s . I have been increasing by dosage of Synamet since then . I invested in 2016...

I have been diagnosed in 2011. My doc did an initial diagnosis of Parkinson’s . ...

•7 years ago

Need a short information hand out for care givers

I'm trying to find a short but to the point of PSP to give home care and any medical team I come across.Need it to short because no one will read it...

I'm trying to find a short but to the point of PSP to give home care and any med...

•7 years ago

The effect of a cold?

Hello all My husband had a cold about 3 weeks ago, not the flu, a small temperature yet no infections. Been visited by paramedics, the on call doctor and his...

Hello all My husband had a cold about 3 weeks ago, not the flu, a small temperat...

•7 years ago

Desperate times

So my dad who is the main sole carer of my mum who has PSP has broken down and admitted that he can't take anymore 😢 I don't blame him.. he has been doing a...

So my dad who is the main sole carer of my mum who has PSP has broken down and a...

•7 years ago

Broken Brain Docuseries

This is a free docuseries. Below is a description. May have some interest. https://brokenbrain.com/trailer/?oprid=6680 On January 17, at 6:00 p.m. EST, Dr....

This is a free docuseries. Below is a description. May have some interest. http...

•7 years ago

the lark and the owl

i'm definitely a lark -alive to the morning just before dawn - a time for me to focus on the advanced math of quantum theory. i'm through the escape hatch into...

i'm definitely a lark -alive to the morning just before dawn - a time for me to ...

•7 years ago

I wonder who I am

I don't really know who I am anymore. I look at myself and see someone I don't really like. I was never like this (yelling, etc. a shrew) and now am, numb...

I don't really know who I am anymore. I look at myself and see someone I don't ...

•7 years ago

New diagnosis for my dad.

Well, having battled away against what they thought was parkinsons disease for the past ten years, survived 45 minutes of life saving resuscitation on the...

Well, having battled away against what they thought was parkinsons disease for ...

•7 years ago

A wonderful Christmas present from a dear friend......

Last Tuesday I went to the opera for the first time, it was something I have wanted to experience for many years. I went with my friend who I have known for...

Last Tuesday I went to the opera for the first time, it was something I have wa...

•7 years ago

The road doesn't end

It's been a long downturn for Neil,I was thinking he would really rebound like he usually does, never to what he was but this time it's just seems to keep...

It's been a long downturn for Neil,I was thinking he would really rebound like h...

•7 years ago

CBD and delusions?

Lately dad has been telling me things he sees or hears and I know for a fact they are not true. I have spoken with his doctor and he just says it may be...

Lately dad has been telling me things he sees or hears and I know for a fact th...

•7 years ago

Support needed

Hi I have signed up to this as need support. My 84 year old mum has PSP and I am finding it very difficult. Over the past 3 weeks there has been a big...

Hi I have signed up to this as need support. My 84 year old mum has PSP and I am...

•7 years ago

Signs of final moments

I hope this helps those of us that are near the end of this ordeal.

I hope this helps those of us that are near the end of this ordeal.

•7 years ago

Coughing while sleeping. Fluid intake

Dan usually doesn’t have much trouble with choking or coughing during the day as long as he uses a straw, but he is coughing several times at night. Oddly, he...

Dan usually doesn’t have much trouble with choking or coughing during the day as...

•7 years ago

THE AIRBAG TO PROTECT THE HIPS AT THE CES IN LAS VEGAS

https://www.helite.com/airbag-hip-air-seniors-ces-las-vegas DISCOVER HIP’AIR : THE AIRBAG TO PROTECT THE HIPS AT THE CES IN LAS VEGAS

https://www.helite.com/airbag-hip-air-seniors-ces-las-vegas DISCOVER HIP’AIR : T...

•7 years ago

Airbags for handicaps at the Las Vegas Hi Tech Circus

I saw yesterday on TV that an inventor presented an airbag for handicapped people. I thought it could be useful one day for PSP people. After a bit more...

I saw yesterday on TV that an inventor presented an airbag for handicapped peopl...

•7 years ago

The loss of a loved one

Hi my wife of 44 years lost her battle today with PSP. I do not post very often I want to thank all the people who post on health lock.com . You have given a...

Hi my wife of 44 years lost her battle today with PSP. I do not post very often ...

•7 years ago

Looking back, trying to make sense of what happened to dad at times.

Having reached the end of my dad’s journey I am able to look back and see the big picture, now that I am no longer struggling with the constant minutiae. I see...

Having reached the end of my dad’s journey I am able to look back and see the bi...

•7 years ago

Hopeless situation

Mum is getting worse with constant choking due to exsessive saliva. Mobility is pretty much non existent. Every time she stands up (aided) she ends up falling...

Mum is getting worse with constant choking due to exsessive saliva. Mobility is ...

•7 years ago

Deep Sleep and PSP

Hello Everyone, I am caring for my elderly mom 86 who was diagnosed with PSP over 8 years ago. Lately she’s been having recurring UTI’s and we’re in the...

Hello Everyone, I am caring for my elderly mom 86 who was diagnosed with PSP ov...

•7 years ago

Why So Many UTIs?

Hello Community: I notice from past posts that many sufferers have constant UTIs. (urinary tract infections) I'm trying to prepare/prevent for hubby as we slip...

Hello Community: I notice from past posts that many sufferers have constant UTIs...

•7 years ago

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