We finally lost the battle with PSP. My mum passed away peacefully over the weekend. She passed away in the afternoon and according to Islamic practice was buried later that evening.
Mum was in a lot of pain and discomfort. We're grateful that her final moments were peaceful.
I wanted to thank everyone on the forum for all the support and advice over the last two years. I will be stepping away from the forum as I need to get away from PSP as it is too painful. I wish all of you the best with your loved ones, don't give up, carry on fighting for your loved ones.