mobility outdoors

[jmoffat]

just bought a 4 wheel pushalong to get outside safely

thinking about buying an electric wheelchair--anyone with advice on this ?

[honjen43]

Better to walk while you can !! Don't know anything about electric wheelchairs, but imagine arm and hand strength may be important in handling up and down awkward steps and angles. Paths are not always designed ideally. Falling off a definite 'Nono'!

Ask Bargiepat about his walking hols with friends with poles!

Ingenuity may be better than the obvious sometimes!

Go well!

Hugs

Jen xxx

[jmoffat in reply to honjen43]

Thankyou that's v helpful ,,,🙂

[Tippyleaf]

Hi we bought a mobility scooter for my husband which was really useful. The small ones break down into 4/5 pieces so can go in a car boot. Lots of gardens etc loan them out so you could have a try first.

Very important to keep walking 🚶‍♀️ keeps your muscles strong.

Enjoy getting out and about

Love Tippy

[jmoffat in reply to Tippyleaf]

thanks looks like ill stick to the 4 wheel rollator so long as i can

[JA10]

My Mum tried an electric wheelchair for in her house, but because of the problems with her downward gaze she had problems using the small joystick control. She also had problems processing the size versus space when moving around and kept crashing into things. So we gave up and she has a manual wheelchair, she is jealous of my Dad who has an electric one due to MS so has a lot more freedom than she does, but it is her only option. PSP and electric wheelchairs, not good. We did borrow a mobility scooter when we were out once in the early days and she coped ok, though even then her processing speed for the need to turn when approaching a corner or to brake where not good and she needed quite a lot of assistance.

[jmoffat in reply to JA10]

Thanks that's helpful

[Marie_14]

Do you still drive? If the answer to that is no then an electric wheelchair would not be good. In fact even if the answer is yes I don't think it would be a good idea. My husband was not allowed to have a lightweight one that could be pushed.

However you need to walk as long as you are able to but safely. Have you got anyone to help you when you are out?

Be careful when at home too. My husband fell down the last couple of steps on the stairs and broke the two bones in his right arm! It really meant the end of a lot of things for him, so be careful. Can you speak to an OT about this? Or your Neurologist? Assuming they know about the daily limitations of PSP? Or CBD? Not sure what you have but the effect is much the same.

Take good care of yourself.

Marie x

[Marie_14]

Just read my reply to you again and made a mistake! Meant to say, my husband HAD a lightweight wheelchair which I had to push! Not easy, and eventually he started to slide out of it. Probably after about 12 months if that. Then he had to go to hospital appointments on a stretcher for about 3 months until he died. Sorry, I know how hard this is. My husband thought like you that he could have an electric wheelchair as did I. However we were told it would be unsafe.

Take care.

Marie x

[jmoffat in reply to Marie_14]

Marie

Thank you

[Karynleitner]

My husband is in the later stages of PSP. We are looking at electric wheelchairs with dual controls so that a caregiver can move him about easily. We hope it will open some new possibilities. Unfortunately , we must privately pay for it.