Two types of PSP

[wear1947]

Does anyone have data on a PSP of rapid progress and a slow one? The fast one ends in dementia and the slow PSP mainly affects the physical ones.

[honjen43]

Dont know how you uuse this site, but if you use a tablet or laptop, there is a search function on recent posts on right hand side. This may give you the info you are looking for. I know there has been a recent post on the different types of PSP.

Hugs

Jen xxx

[honjen43]

Dont worry about any language 'barrier'! Various people speak more than 1 language, and we

are used to dealing with Google translations! We understand your concerns and will try to answer them.

Hugs

Jen xxx

[Heady]

Go to the old posts and try and find some from Shrelley. He was a wealth of information about this.

Lots of love

Anne

[Kevin_1]

Hi wear1947

No I've not come across this.

The search engine on this site is pretty poor.

Its best to search in Google with something like "Health Unlocked *****"

Good luck

Best

Kevin

[Marie_14]

There does appear to be a slow PSP and one which progresses faster. However not everyone gets all the symptoms of PSP and that I am sure applies to Dementia too. My husband had the fast one but no Dementia.

Marie x

[wear1947 in reply to Marie_14]

Thanks, for this useful information Marie. Atypical Parkinson's disease is very complex. For instance, there are pacients with a mix of PSP and CBD. It is very common to have a PSP diagnostic after years (or months) of Apparent Parkinson's.

[rriddle]

wear1947,

I wouldn't say the fast one ends in dementia. The fast one begins with dementia. The slower type of PSP looks like Parkinson's.

See:

brainsupportnetwork.org/edu...

Robin

[wear1947 in reply to rriddle]

Thank you for the advice. !

[LuisRodicioRodicio in reply to rriddle]

Thanks. Hug.

Luis

[Marie_14 in reply to rriddle]

Robin that didn't happen to my husband. His first symptom was dragging his foot. Then stumbling, then falling and in a matter of months. I think we all scare ourselves to death thinking everything on the list of symptoms will happen but thankfully it doesn't. However my husband had Leukaemia at the time and was told he had PSP with signs if MSA. So that may have confused the issue somewhat?

Marie x

[rriddle in reply to Marie_14]

Marie,

There are two main types of PSP. (There are three other, less common types.)

Not exactly sure what "didn't happen" to your husband. No dementia at the outset? If no dementia (or cognitive impairment) at the outset, then he doesn't have the Richardson's syndrome type.

If he had Parkinson's symptoms at the outset (and that sounds likely if he was also thought to have MSA symptoms), then it's more likely he has the PSP-parkinsonism type. (Or one of the three rarer types.)

Robin

[daddyt]

I'm sure there is information from PSPA on all of the phenol types of PSP. I must be the exception, I have frontal temporal dementia- FTD and my progress has been slower than most.

[rriddle in reply to daddyt]

daddyt,

I haven't heard of a type of PSP* that looks like FTD, except for the PSP-PNFA phenotype. (There are types of CBS that look like FTD.) What "flavor" of FTD do you have? Behavioral variant?

That being said, there are huge overlaps between PSP and FTDbv. I did wonder if my dad had FTD but he had the classic eye movement problems and rigidity that come with PSP. And PSP was confirmed through brain donation. Indeed, for the last several years, I've been asked to speak to the annual FTD conference in the US because of the symptom commonality.

Robin

* blog post on the 5 types of PSP:

brainsupportnetwork.org/fiv...

[steph02]

I have done a fair bit of research into the slower forms of psp. having been diagnosed with atypical parkinsonisms about 10 years ago, this was later changed to atypical psp about 4 years ago. you can see why I wanted to find out exactly what is happening to me as it turned out it appears that i have the PAGF form of psp ie. pure akinesia with freezing of gait, i think that my neurologist finally accepts this although he still calls it atypical psp this indeed is a rare form of this disease the progression has been very slow although still there. I am falling over a bit more lately as i find it increasingly difficult to walk but apart from this i feel entirely normal,

[rriddle in reply to steph02]

Indeed, the lady in my support group diagnosed with PSP in 2004 -- still alive -- also has the PAGF form. I am so glad you feel normal!