Posts - PSP Association | HealthUnlocked

PSP Association

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All posts for July 2024

Psp and Lurasidone

My mum was diagnosed with PSP about a year ago but has had symptoms for several years. She is currently in a care home. She was put on Lurasidone as a result...

My mum was diagnosed with PSP about a year ago but has had symptoms for several ...

Artybex

•5 months ago

2 Replies

Elsternwick

I have PSP & am suffering with a painful back & right leg. Especaly at night or when I ie flat. Started before I had a bad bachwards fall. Is this common...

I have PSP & am suffering with a painful back & right leg. Especaly at night ...

elsternwick

•5 months ago

4 Replies

Supporting a loved one with psp

My dad was diagnosed with psp around 8 months ago (originally misdiagnosed as Parkinson’s). He is bed bound, can’t really speak anymore, and is very sleepy all...

My dad was diagnosed with psp around 8 months ago (originally misdiagnosed as Pa...

Fizz12

•5 months ago

5 Replies

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Motability Car

Hi, My husband currently receives Attendance Allowance and I receive Carer’s Allowance. He has limited mobility and uses a wheelchair. I’ve been researching...

Hi, My husband currently receives Attendance Allowance and I receive Carer’s A...

Darlingtonian

•5 months ago

7 Replies

Thank you all

I want to thank everyone who replied to my post thank you all so much.

Morag1952

•5 months ago

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Choosing a car (UK)

Hello, my father has PSP, he was diagnosed about 18 months ago and I have read all sorts of brilliant advice on this forum, and also from the helpline. What I...

Hello, my father has PSP, he was diagnosed about 18 months ago and I have read ...

Crhome

•5 months ago

30 Replies

Nearing the end

Hello allMy poor husband is nearing the end unable to have food or fluids the hospice won't allow it due to the choke risk Has IV fluids but not for long...

Hello allMy poor husband is nearing the end unable to have food or fluids the ho...

Northstar1

•5 months ago

29 Replies

psp and coping

Hello my husband has psp diagnosed initially with Parkinson’s but now psp has care in place but me myself find it increasingly difficult to cope he has hardly...

Hello my husband has psp diagnosed initially with Parkinson’s but now psp has ca...

Morag1952

•5 months ago

23 Replies

Not to Happy

well hi everyone I went to see my neurologist and after a ten minute assessment my Dr said that I have pspand not Parkinson’s so if I was diagnosed back in...

well hi everyone I went to see my neurologist and after a ten minute assessmen...

Starwarsthe

•5 months ago

1 Reply

Not to Happy

well hi everyone I went to see my neurologist and after a ten minute assessment my Dr said that I have pspand not Parkinson’s so if I was diagnosed back in...

well hi everyone I went to see my neurologist and after a ten minute assessmen...

Starwarsthe

•5 months ago

2 Replies

Not to Happy

well hi everyone I went to see my neurologist and after a ten minute assessment my Dr said that I have pspand not Parkinson’s so if I was diagnosed back in...

well hi everyone I went to see my neurologist and after a ten minute assessmen...

Starwarsthe

•5 months ago

9 Replies

Wheelchair

Hello all,We're in the market for a new wheelchair for my Mum (PSP diagnosed Aug 2022) as our old borrowed one is rapidly disintegrating. There is a...

Hello all,We're in the market for a new wheelchair for my Mum (PSP diagnosed Aug...

Bodhi17

•5 months ago

13 Replies

Irini Greece

Hello to everybody!I am disappointed to find out that many people have to live that way.. So young, my husband , a physics professor, to have to cope with this...

Hello to everybody!I am disappointed to find out that many people have to live t...

Givemehopefor

•6 months ago

4 Replies

CHC - one step closer

As I've mentioned before, we've reached the stage where my husband's care needs are getting complex, and we feel it would be appropriate for the NHS to provide...

As I've mentioned before, we've reached the stage where my husband's care needs ...

Bergenser

•6 months ago

47 Replies

Navigating PSP, Embracing Individual Journeys

Saw this blog entry, so well put. https://pspawareness.com/blogs/psp-q-a/navigating-progressive-supranuclear-palsy-embracing-individual-journeys

Saw this blog entry, so well put. https://pspawareness.com/blogs/psp-q-a/navigat...

Zerachiel

•6 months ago

5 Replies

medication

I woul like to know what medication is helpful to combat psp Thank you Glen

Starwarsthe

•6 months ago

6 Replies

brandisuki

my wife was diagnosed with PSP in january ,she is receiving plenty of nhs help and we now have carers coming twice a day. I have been reading about applying...

my wife was diagnosed with PSP in january ,she is receiving plenty of nhs help a...

brandysuki

•6 months ago

9 Replies

questions for neurologist

I have recently been diagnosed with psp and am due to see a neurologist next month. I’ve declined quite rapidly since the diagnosis so am wondering if there...

I have recently been diagnosed with psp and am due to see a neurologist next mon...

Diggerandsam

•6 months ago

16 Replies

Seizures

My husband had CBD he had three seizures last Tuesday in the early hours two at home one in resus. On Saturday he had two more in hospital. The Drs prescribed...

My husband had CBD he had three seizures last Tuesday in the early hours two at ...

Northstar1

•6 months ago

3 Replies

PSP Spasms

my wife suffers from this awful disease and gets really painful spasms and pain in her legs, usually the left leg and then sometimes starts in the right leg co...

my wife suffers from this awful disease and gets really painful spasms and pain ...

Prius1

•6 months ago

8 Replies

Jess's PSP London Marathon Fundraising

My Granddaughter is running the London Marathon for PSPA. Her Grandfather died in 2016 with this awful disease after 7 years. Her Aunt and cousin have...

My Granddaughter is running the London Marathon for PSPA. Her Grandfather died i...

Barbara71

•6 months ago

6 Replies

Can taking Sinemet when not needed cause PSP-like symptoms?

Hi everyone. We're in the UK. My mother in-law, at 81, was admitted to hospital in the summer of 2022 with a fall, as a result of extreme dehydration. She...

Hi everyone. We're in the UK. My mother in-law, at 81, was admitted to hospital ...

Lexilover24

•6 months ago

8 Replies

Medical bed and wheelchair recommendations

Good evening. My MIL has psp and her condition is deteriorating rapidly. she is currently unable to walk. do you have any recommendations for medical beds and...

Good evening. My MIL has psp and her condition is deteriorating rapidly. she is...

DaniSS

•6 months ago

3 Replies

Making memories

A cheerful post to share a happy occasion. My husband's condition has been very unpredictable in recent months and I've been apprehensive about making plans...

A cheerful post to share a happy occasion. My husband's condition has been very ...

Bergenser

•6 months ago

24 Replies

increasing distress

hello. my mum has PSP and is becoming increasingly distressed. It seems to be exacerbated by new staff in her care home not following her preferred routine....

hello. my mum has PSP and is becoming increasingly distressed. It seems to be e...

Girvangal

•6 months ago

17 Replies

Angel Wings

My darling Ann has gained her angel wings and flown away. She has been released from this awful disease.Although I have not posted comments, I have received...

My darling Ann has gained her angel wings and flown away. She has been released...

Corpen

•6 months ago

20 Replies

PEG vs Aspirational Pneumonia

Mum has reached a new point in her illness and food intake is now causing her to be sick on occasion which is ultimately leading to seizures and a risk of...

Mum has reached a new point in her illness and food intake is now causing her to...

bichonbear1

•6 months ago

25 Replies

travel insurance for extended periods

hi, I have a benign brain tumour but I also want to be away for more than 35 days at a time. Can anyone recommend a company? Thanks

hi, I have a benign brain tumour but I also want to be away for more than 35 day...

SharonDW

•6 months ago

8 Replies

CHC Funding -Compass

I had a call with Compass CHC this morning regarding possible assistance in applying for NHS funding for my husband. I have to admit I was shocked when the...

I had a call with Compass CHC this morning regarding possible assistance in appl...

Licquoricelover

•6 months ago

20 Replies

Wheelchair funding UK

Hello, My mum who is 79yo and in advanced stages of CBD and has been in nursing home for last 7 months needs a new wheelchair. It's been advised that she...

Hello, My mum who is 79yo and in advanced stages of CBD and has been in nursing...

joshwr

•6 months ago

3 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for July 2024

Psp and Lurasidone

Elsternwick

Supporting a loved one with psp

Motability Car

Thank you all

Choosing a car (UK)

Nearing the end

psp and coping

Not to Happy

Not to Happy

Not to Happy

Wheelchair

Irini Greece

CHC - one step closer

Navigating PSP, Embracing Individual Journeys

medication

brandisuki

questions for neurologist

Seizures

PSP Spasms

Jess's PSP London Marathon Fundraising

Can taking Sinemet when not needed cause PSP-like symptoms?

Medical bed and wheelchair recommendations

Making memories

increasing distress

Angel Wings

PEG vs Aspirational Pneumonia

travel insurance for extended periods

CHC Funding -Compass

Wheelchair funding UK

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive