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PSP Association

9,266 members • 11,356 posts

All posts for April 2017

We will always miss you

I joined this forum few months ago. Everybody has been so supportive and great. It feels like one big family. Somebody is always there to help or answer...

I joined this forum few months ago. Everybody has been so supportive and great. ...

•7 years ago

Thank you!

Want to let you all know how much I truly appreciate your support. Have a feeling I may be leaning on you more often in the days to come. heartfelt...

Want to let you all know how much I truly appreciate your support. Have a feelin...

•7 years ago

Just signed up today

Hi everyone , my husband has recently been diagnosed with PSP after 8 years of misdiagnosis. He has his initial appointment with Dr Massey at the end of May....

Hi everyone , my husband has recently been diagnosed with PSP after 8 years of m...

•7 years ago

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Forum access problem!s - feeling cut off

Anyone else had problems with access to website today? I have received the emails, but the "See Post" button does not result in full access - just a white...

Anyone else had problems with access to website today? I have received the email...

•7 years ago

Good enough - an addendum

Thank you all for so many supportive and informed posts. There was something afoot. This morning Liz woke weaker and more fatigued than I have ever seen......

Thank you all for so many supportive and informed posts. There was something af...

•7 years ago

Losing Hope

Here we go, one of my few and far between posts. I'm feeling depleted, the tears have been flowing quite freely, and quite often lately. It seems the past few...

Here we go, one of my few and far between posts. I'm feeling depleted, the tears...

•7 years ago

life

I have been diagnosed with motor nuroin and for the last 3 years I have had frontal dementia life seems over and I feel like I am existing not living

I have been diagnosed with motor nuroin and for the last 3 years I have had f...

•7 years ago

Cause of death???

My dad had suffered from the effects of psp for about 4 years. And passed away this January. His death was unexpected, even though he was miserable and wanted...

My dad had suffered from the effects of psp for about 4 years. And passed away t...

•7 years ago

Am I good enough? - The carers ghost

Hi folks, Are there elephants in my room, or is it just me? Am I a good enough carer? We all ask that one and to be frank we can never be good enough. We...

Hi folks, Are there elephants in my room, or is it just me? Am I a good enough ...

•7 years ago

Easter weekend x2

Sorry wrong picture

Sorry wrong picture

allotmentartist

•7 years ago

Easter weekend happy times

Short trip to Edinburgh. We've just come back from spending easter week with my daughter and family she had hired a cottage in cramond village for a long...

Short trip to Edinburgh. We've just come back from spending easter week with my ...

allotmentartist

•7 years ago

Parkinson's to PSP

I have gained much strength from all your shares. A few times I have shared, but only in bits and pieces. I think it's time to formally post. This is my...

I have gained much strength from all your shares. A few times I have shared, bu...

•7 years ago

Where we are

Hi, everyone. It's been a while since I posted anything in general about the current state of affairs here. It has been really quite a challenging year for me...

Hi, everyone. It's been a while since I posted anything in general about the cur...

•7 years ago

chc driving me nuts

mum qualified for a full assessment in feb and chc received the paperwork on 15th feb, chc requested a social worker to be assigned for this ( as mum has moved...

mum qualified for a full assessment in feb and chc received the paperwork on 15t...

•7 years ago

Also feeling guilty

I'm feeling guilty, but can't stop feeling frustrated with C, he has become obsessed with so many things and they change on a daily basis, he gets so angry...

I'm feeling guilty, but can't stop feeling frustrated with C, he has become obse...

•7 years ago

Mom

My mom was recently diagnosed with PSP about a month ago. She has probably had it for three years.. she is still walking but her mobility is poor.. lots of...

My mom was recently diagnosed with PSP about a month ago. She has probably had i...

•7 years ago

Finally getting a care package

Hi all Well been to hospital again today and finally been told that the care package for all his needs have been picked up so looks like archie could be home...

Hi all Well been to hospital again today and finally been told that the care pac...

•7 years ago

My mom past

My mom past two weeks ago tonight in the Kanas Center for Hospice Care. Thank You all for your support and posts! I've used them to educate and advocate to...

My mom past two weeks ago tonight in the Kanas Center for Hospice Care. Thank Y...

•7 years ago

Making plans

My father has recently been diagnosed with PSP but we think he has had it for some time. His breathing and speech is already impacted, he is finding every day...

My father has recently been diagnosed with PSP but we think he has had it for so...

•7 years ago

Chest infections

Hello all, My Dad was admitted to hospital with another (he's had a few) chest infection last week. He is due to go home tomorrow. I know he's prone to them...

Hello all, My Dad was admitted to hospital with another (he's had a few) chest i...

•7 years ago

Prism Lens

Hi, my husband has vision problems, and has been prescribed prism lens. We now will visit the optometry shop to get the prescription filled, but we are very...

Hi, my husband has vision problems, and has been prescribed prism lens. We now ...

•7 years ago

Review today

Hi We have an urgent review with chc this afternoon I just got to my worst nightmare (the hospital) and a stupid dr has said that he is going home today...

Hi We have an urgent review with chc this afternoon I just got to my worst nig...

•7 years ago

Apologies

Hi everyone. I want to apologise. I first came on here 3 weeks ago. So many of you replied to my first post. The love, care, compassion and support on this...

Hi everyone. I want to apologise. I first came on here 3 weeks ago. So many of y...

•7 years ago

Edinburgh support

Hi everyone, I am writing to see if there is anyone based in and around Edinburgh who has a partner with PSP too. My partner has been diagnosed with PSP just...

Hi everyone, I am writing to see if there is anyone based in and around Edinburg...

•7 years ago

Psp help

Hi all, My dad is 79 and was diagnosed with PSP in early 2013. He has deteriorated significantly in the past year or so. He now almost never speaks and his...

Hi all, My dad is 79 and was diagnosed with PSP in early 2013. He has deterior...

•7 years ago

Mobility

Happy Easter today to anyone in Australia & to everyone else wherever you are & whenever it is for you. I would like to hear from anyone dealing with CBD....

Happy Easter today to anyone in Australia & to everyone else wherever you are & ...

•7 years ago

Advice needed

Hi everyone, firstly Happy Easter to you all. I hope you have a restful time. DC is home now and we are adjusting to a new routine with the carers. Who I have...

Hi everyone, firstly Happy Easter to you all. I hope you have a restful time. D...

•7 years ago

Did it really happen???

Hi All It has been a while since I have posted, I have been trying to get on with life and come to the realization that my mother in law is not here. Her end...

Hi All It has been a while since I have posted, I have been trying to get on wit...

•7 years ago

Going home for Easter?

I'm planning on going to visit my mother and sister today through Monday for the Easter holiday. However, I was informed this morning that the facility where I...

I'm planning on going to visit my mother and sister today through Monday for the...

•7 years ago

New to this group

Hi my mom was diagnosed with PSP a year ago as she had lost her balance for around 3 years and kept falling. She is 90 in May. So far (touch wood) her speech...

Hi my mom was diagnosed with PSP a year ago as she had lost her balance for arou...

•7 years ago

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