Hi everyone. I want to apologise. I first came on here 3 weeks ago. So many of you replied to my first post. The love, care, compassion and support on this forum is incredible. I have read all the daily posts since but I am ashamed to say, I haven't joined in or been of any help. I feel terribly selfish that I asked for help but have given none in return. But to be honest, the more I learn about psp, I am Petrified!. It is so completely vile and shit!!! I guess I have hidden myself away. We have two daughters aged 10 and 13. I just cannot get my head around what they will be going through/ have to face. Watching their young dad deteriorate whilst they are going through school , gcse's, college/uni.
At the moment P (hubby) is able to work full time. But he often misses the last few rungs of his ladder on his descent. He loses his balance most days but no major falls recently. He limps due to stiff legs. Has a slight tremor and fatigue. Other than dropping his food down himself and missing the toilet on a daily basis, you wouldn't know he is ill!! But it's the not knowing. Will he stay at this manageable stage for some time or will I be pushing him in a wheelchair next year?,!! I guess none of us know the answer. We just have to take each day at a time. At the moment i'm not devastated for myself but for the children and him.
Anyway, sorry. I just wanted to apologise and say I am here reading every post . And I will soon be joining in and supporting you all. I just need time to adjust and accept.
ch love to you all xxxx