My father has recently been diagnosed with PSP but we think he has had it for some time. His breathing and speech is already impacted, he is finding every day activities very hard and gets very tired. Although he still goes for a short walk each day. My family are all planners and with a condition like this, we are all floundering a little. Mu mum and dad have a couple of trips coming up in June, which should be ok with some assistance. But they have been discussing this train trip that they would really love to do. It's so hard to know - should they drop everything to fulfill a bucket list item while they still can? Or can they take a gamble that they could still take a trip like that later in the year, say August? I know there is no real answer to this as everyone is different. But just wondering how quickly things progressed for you? Was it months or years? Just wondering how quickly we need to seize the day!