My dad is 79 and was diagnosed with PSP in early 2013. He has deteriorated significantly in the past year or so.
He now almost never speaks and his vision is badly impaired. He is still walking with a frame.
However it can take him many minutes to move from his stairlift into the kitchen or anywhere downstairs.
When he sits he now does so with a pronounced lean to the right and he also appears to drag his right foot when moving around.
He also falls regularly - particularly when he is in bed. He also tends to move around in bed and my mother sometimes finds him facing the wrong way or even with his feet up against the wall.
Recently he has all but stopped eating - taking very small amounts of food - although he does eat biscuits and cake. He also refuses his medication and my mother (his primary carer) is finding it increasingly difficult to manage his pills. He often chokes while eating and drinking - he does drink regularly from a beaker of water so generally isn't dehydrated. The reduced intake of food has led to a dramatic loss in weight.
He was seen my an eating specialist a week or so ago but none of their recommendations have helped.
The family are increasing distressed by his condition and I wondered if anyone could offer any advice and guidance about it.