Advice needed: Hi everyone, firstly Happy... - PSP Association

PSP Association

9,255 members • 11,351 posts

Advice needed

Tillyhugs profile image
Tillyhugs
•7 Replies

Hi everyone, firstly Happy Easter to you all. I hope you have a restful time.

DC is home now and we are adjusting to a new routine with the carers. Who I have to say are so good 😊. He now has his special chair so can get out of bed at last, although they have to use a hoist. The wheelchair is due to arrive on Thursday fingers crossed. My problem now is I am going to have to change the car to a wheelchair accessible vehicle 🚗. Has anyone had experience with WAVs? DC will be getting a Rea Azalea wheelchair. Any ideas what would be suitable and have you had experience with Motability for ordering one? I would appreciate any advice.

Take care hugs

Tillyhugs x

Written by
Tillyhugs profile image
Tillyhugs
To view profiles and participate in discussions please or .
7 Replies
•
vlh4444 profile image
vlh4444

Happy Easter Tillyhugs. Glad you are getting on OK with your new carers.

Re WAVs we had a VW Caddy Maxi which was pretty good. The advantage of that one for us was that you still get the full row of rear seats as well as space behind for the wheelchair so there is plenty of room for dog cage, grandchildren and luggage as well as wheelchair passenger. I found it quite easy to load and unload both manual and electric wheelchair via rear ramp.

Not sure what age your husband is but Motability is only available if under 65 so we weren't able to get it.

Vicki x

Tillyhugs profile image
Tillyhugs in reply to vlh4444

Thank you I have looked on line at that one. DC is 68 but we are already in the motability system. It seems the converters are not here in Wirral/ Cheshire area. Did the agents bring the Caddy to you?

Tillyhugs xxx

vlh4444 profile image
vlh4444 in reply to Tillyhugs

No I had to go on the train to fetch it but I got it cheaper because I did that. There are dealers who will deliver. Ours was second hand (2010). It was an absolute life line for us as D was able to get out and about almost to the end and I was able to take him to the hospice day service without needing to wait for transport.

V x

Julieandrog profile image
Julieandrog

Hi I will be very interested in these posts as we are at exactly the same point! Any comments would be so useful. We have wheelchair review on weds , I is there any funding re electric chairs?

Julie x

Amilazy profile image
Amilazy

Hi Tilley

I have a Renault Kangoo, 3 seats but big enough to take largest wheelchair and person. But also convenient height front seat if PSP sufferer has still some mobility and can transfer easily. Good economy. Suggest when looking check on the ramp mine is manual no problem for me but requires bending and lifting so may not be best for some especially if you have a back issue. Look to see if powered ramp available or check ramp is easy for you to drop and lift.

I got my WAV 2nd hand from dealer in Ruthin North Wales, who delivers and allows test drives across U.K. Website is mobilitynationwide.co.uk. Lots of choice and not too expensive. I can only say the vehicle made taking my wife around so much easier and allowed her to continue to get out almost up to the end.

My only snag is now my wife has gone is selling even part exchange is limited, though I have had a couple of responses to a newspaper ad.

Good luck. Tim

Tillyhugs profile image
Tillyhugs in reply to Amilazy

Thank you Tim I will check the website out.

Take care

Tillyhugs

Fiona_S profile image
Fiona_S

We are just at that same stage too (husband of 73 with PPA and PSP/CBD - yes even Queen Square cannot be more precise). We have just got (on lease) a VW Caddy obtained through Motability because Peter had a prior disability (at age 63 from a rare cancer in thigh bone). It is brilliant, has transformed our lives. Only got it last week, but getting into standard car from wheelchair with turner was getting so precarious. We got the Caddy from a place in Yeovil (Brotherwood) and they were more than willing to drive twice to Surrey. We ended up with a new one because they were then able to make a bespoke floor adaptation for the dog! We decided to pay extra for an electric pulley system, although that probably is not essential as the ramp is shallow enough to make access easy enough manually, given that Peter, sadly only weighs about 60 kg. We have also had assessment by NHS wheelchair service and are awaiting a Rea Azalea. That seems to be the make all therapists recommends. With our current standard wheelchair Peter now slumps forward and sideways, and is not safe to be left in. I will feel happier to have in the car with that more supportive wheelchair.

I hope you can find some garages to come and demonstrate to you Tilly.

Fiona S

You may also like...

Help! urgent advice needed?

of CBD. We have tried to get privately funded carers (tried 3 companies) and also carers through...

Need some advice please

suggestions on anything would be appreciated. Thank you Love and hugs Helen xx

Just joining in and needing advice

villa is up for sale. We have just moved to our second rented bungalow and have had to set things...

New here and need some advice

family have suggested that we go as soon as possible. Do any of you who have more experience than I...

Advice needed on Chc funding

of her needs are social which mum n dad have to fund. I have spoke to them about fast track because...