Here we go, one of my few and far between posts. I'm feeling depleted, the tears have been flowing quite freely, and quite often lately. It seems the past few months have been a quick, steady decline, or progression in this most brutal disease. Choking and aspiration have become a daily problem, the norm. Communication is so limited, I don't know how any of his needs can be adequately met when he cannot express himself. They brought in some device but is no easier than his IPad, he has poor dexterity, and freezes constantly. His eyes close involuntarily all the time too. It just effing stinks this horrendous disease. There is nothing I can do, I visit as often as possible, but it's so hard to go and see this. I leave in tears every time. How cruel to allow someone to live like this! I'm so sad, and so angry at this stupid PSP!! I know it's not about me, but I'm not sure how long I can keep going like this!
Just had to rant, I'm at my wits end, frustrated beyond frustration