Review today

[Suebatt]

Hi

We have an urgent review with chc this afternoon

I just got to my worst nightmare (the hospital) and a stupid dr has said that he is going home today

What a bloody joke and he won't accept that he's not going home

There is no care in place these people make my blood boil

Sorry for the venting

Sue x

[Stevewithpsp]

It's very hard when you and you're loved one are treated like sides of beef rather than human beings going through the struggle of your lifetimes. My personal belief is that this happens because the medical profession is ignorant concerning the disease and the effects on everyone involved. They, like us, fear what they don't understand, but are too arrogant to confess their ignorance. Therefore they choose make stupid and uninformed decisions without a second thought as to the effect it has on you.

Sorry you have to pay the price for that ignorance. I wish I could suggest something constructive, but we are little people fighting a monolithic bureaucracy and only get proper care through sheer luck of the draw when it comes to who makes these important decisions.

With best wishes for better days ahead, I remain,

Steve

[Suebatt in reply to Stevewithpsp]

Thanks Steve

I agree they are ignorant the lot of them

I have more knowledge then them about it and I will continue to voice my opinions till he's home

Sue x

[Stevewithpsp in reply to Suebatt]

Good for you. It's unfortunate that they don't take us serious, and sometimes you have to take matters into your own hands.

Warmest wishes,

Steve

[Kevin_1]

Hi Sue

Good luck]and, you vent away. You have plenty to vent about!

I do hope it goes well for you both.

It's so damned stressful.

Warmly

Kevin

[Suebatt in reply to Kevin_1]

Hi Kevin

Chc came and it wasn't fast track cause he's not at end of life. Goes in front of panel next week now

After giving her the paperwork that I'd got and wanting to know what he's been like since November and said that she can see a difference in some things but I don't think it has changed his scoring .

I asked her to present the checklist for chc healthcare professionals pawl to read too as they won't know about it either .

So the long and the short of it he will be there for another week

Sue x

[Kevin_1 in reply to Suebatt]

Thanks for coming back.

(For the record Fast Track is not just for end of life.)

Good luck.

Best

Kevin

[Julieandrog in reply to Suebatt]

Hi

We had a similar journey with fast track, it can be done for sudden deterioration also, but there has to be a full assessment after six weeks so we were advised to go for that. You are sensible enough not to commit to anything which is not right for you both. But it is sooooo frustrating.

Julie x

[Suebatt in reply to Julieandrog]

Hi Julie

Thanks for that and yes so frustrating as it really does my crust in

What's maddening too is at the moment nobody can pick him up so there he stays . His care package is for four and half hours a day and still nobody

So again my chimney lid has come off to let the steam out

Sue x

[Bargiepat]

I have not yet come face to face with the bureaucracy that you seem to be facing........ I suspect that there is a danger that if you fight it they may become more difficult to deal with.

To stop them sending him home you could just go out and leave the house locked but that might go against your case.

As others have said psp has so much shit attached to it and anymore just makes it worse.

Good luck,

Patrick.

[Suebatt in reply to Bargiepat]

Thank you Patrick

It is a long haul but archie isn't going from there till he has care

Sue x

[Satt2015]

Sue

I'd simply refuse and say that you won't be able to cope (end of) tell the 'stupid dr' no one will be at home as your now away for 2 weeks! See what they make of that!! X

[Suebatt in reply to Satt2015]

Hi

It was a new consultant who knows naff all at what's going on so again unfortunately for them he's there a bit longer

Sue x

[doglington in reply to Suebatt]

It doesn't make sense for anyone, does it ? Its wasting money and causing stress.

[Suebatt in reply to doglington]

That's so true but they must like wasting money instead of looking at it for what it is psp

Sue x

[doglington in reply to Suebatt]

It just makes me so angry. And I've plenty of that looking for a home !!!

[Suebatt in reply to doglington]

I agree I've got a spare chimney for the top of head to let the steam out.just lately I have the lid open often

I haven't got that problem yet looking for a home it's just homecare but hopefully that is sorted now

Sue x

[doglington in reply to Suebatt]

I meant my anger looking for a home. I still care for Chris at home.

Jean x

[Suebatt in reply to doglington]

Sorry I thought you meant a care home

Sue x