life

[090653liz]

I have been diagnosed with motor nuroin and for the last 3 years I have had frontal dementia life seems over and I feel like I am existing not living

[shasha]

HOW TERRIBLE FOR YOU -- I AM SO SORRY XXX

[Kevin_1]

Welcome Liz

Do you have a partner, children?

I am a carer so I cannot even begin to know what it is like.

More who are victims / sufferers will respond.

Tomorrow I shall read your post to my Liz, who has PSP she may well reply with her thoughts about her experience. For no-one but you walks in your shoes.

So for now I am sending hugs.

If you can say a little more about your situation people will get to see some of the things you are struggling with, but I expect typing is not too easy.

So for now hugs and welcome.

Kevin

[Karynleitner]

It is wonderful that you have posted here and are reaching out. I hope you can find something to bring you a little joy and peace. We admire your courage and hope your struggle gets a little easier.

[Hidden]

Hi Liz

I suffer from PSP.

I need to be taken to the toilet now and washed by carers as I am to weak to do that myself.

My thinking has slowed down and I find it difficult to speak now.

Sometimes I too think there is nothing to live for. I used to be lively, active and busy caring for others. Now I spend a lot of my time just sitting and watching T.V.

It is miserable!

Sometimes I feel like I am just a burden.

However there are things which make life bearable: The smell of roses, the sprig of flowering rosemary in the bud vase on my table, my elderly cat who watches over me and the fact that Kevin loves her and will care for me after I am gone. I love my cat. Kevin's love and the hugs and cuddles. The song of the blackbird through my window in the morning and Chocolate!

These are small things, they are all I have now as I wait for this to end.

Find small thing's Liz, enjoy them as I do.

I hope you will write here again. There is a lot of love and support here.

Big hugs

Warmly

Liz

xxx

(Kevin put my thoughts into order and typed this for me)

[shasha]

Hi liz

I to have psp. But I have. A wonderful. Husband. Fred. Who. Looks after me. So. Beautifully. I

Love. Him.to.death to

[Marie_14 in reply to shasha]

Much lovev to you both. How nice that you say you love your husband Fred to death. I am sure the feeling is reciprocated.

Lots of love and hugs to you both.

Marie x

[Fer39wer47da]

Hello There, dear Liz. Thank you for having "opened"up.

You have arrived at the right address, Because all these people, carers and sufferers are in the same boat and they give you incredible support.

I'm à PSP patient. Too and just this morning I cried my heart out, ecayse I really felt things were worsening, like my walking(shuffeling is a better way of describing the movements), my endless falls and of course the closing of my eyes almost constantly, it is like being blind. I felt so terribly bad, and then I read all these posts and i thought to. Myself,you shouldn't complain and cry so much, there is absolutely no reason for it (yet).

Anyway ,I just wanted to share my desperation and let you know that you are not alone out here!

Cheer up, the sun is shining here in France hopefully also where you are.

Lots of hugs, anne baer