PSP Association
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My mom past

My mom past two weeks ago tonight in the Kanas Center for Hospice Care.

Thank You all for your support and posts! I've used them to educate and advocate to the care facility, nurses, and doctors. You are all right, they have no idea about this disease. There is no handbook!

I've hadn't wanted to tell anyone for the sake of bring sorrow to your hearts as mine has been ripped from my body. The reason I'm posting this is its not fair to hold back something that others along your journey in life should be privy to.

Love you all,


4 Replies

So very sorry for your loss.

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So sorry to hear about your mom rob, it is a horrible illness. I see it in my husband after 12 years of fighting I can see him slowing down

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I'm so sorry...My Mom passed away from this horrible disease March 20th...I know how you feel.

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Hi Rob

I am sorry to hear your news.

Thank you for all of your posts, advice and sharing too.

I wish you the best of this difficult time.



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