Posts - PSP Association | HealthUnlocked

PSP Association

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All posts for February 2025

repeated chest infections

hello all. Mum can no longer speak along with zero mobility, dystonia and failing eyesight. she had a chest infection 2 weeks ago for which the care home...

hello all. Mum can no longer speak along with zero mobility, dystonia and faili...

Girvangal

•2 months ago

21 Replies

my friend

My dearest friend was finally diagnosed a couple of years ago. Fortunately she has long term care insurance and a caregiver as well as her husband, who has...

My dearest friend was finally diagnosed a couple of years ago. Fortunately she h...

Scouseusa

•2 months ago

3 Replies

freezing

hi, Re the freezing , may l ask for tips on what people use for this, it has been suggested a red golf ball light on my frame which to be honest l have...

hi, Re the freezing , may l ask for tips on what people use for this, it has be...

Grandmadippy

•2 months ago

5 Replies

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Voice support

Hi , My husbands lovely voice is now a whisper . What are the best options voice magnifying please that people have used . Many Thanks ps ) love to you...

Hi , My husbands lovely voice is now a whisper . What are the best options v...

bladesmad

•2 months ago

12 Replies

diagnosis cbd and psp

mum has been diagnosed with CBD and PSP. We’re heartbroken. At least we can get some proper advice and help now but it doesn’t make it any easier x

mum has been diagnosed with CBD and PSP. We’re heartbroken. At least we can get ...

Karen1981

•2 months ago

21 Replies

hoping for a diagnosis today, wish us luck x

it’s been 4 years and a hard road getting to this point x mum had several fall, was in hospital and now in intermediate care whilst we work out a plan going...

it’s been 4 years and a hard road getting to this point x mum had several fall, ...

Karen1981

•2 months ago

5 Replies

Diary of home adaptations

hi everyone in case this helps. my view on home adaptations is you are always a lap behind the deterioration. That said all the changes we made have had a...

hi everyone in case this helps. my view on home adaptations is you are always ...

AnishH

•2 months ago

20 Replies

At Peace 💔

It is with great sadness that my husband and best friend of 40 years has lost his battle to PSP. Following the usual misdiagnosis pattern over the past 4...

It is with great sadness that my husband and best friend of 40 years has lost ...

Bertieandpiper

•2 months ago

31 Replies

tips for voice problem

I am currently having trouble with voice changes ,gravelly and soft people have had a problem hearing me clearly, my nhs neurological team have suggest I try a...

I am currently having trouble with voice changes ,gravelly and soft people have ...

Grandmadippy

•2 months ago

8 Replies

Finding Slivers of Joy every day ...

Hello friends -- Most of you will not know me, however, I am dropping in to say hello. My account here doesn't seem to exist anymore, and I do not see any...

Hello friends -- Most of you will not know me, however, I am dropping in to s...

bazooka111

•2 months ago

18 Replies

Finding Slivers of Joy each day ...

Hello friends -- Most of you will not know me, however, I am dropping in to say hello. My account here doesn't seem to exist anymore, and I do not see any...

Hello friends -- Most of you will not know me, however, I am dropping in to sa...

Bazooka718

•2 months ago

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hiya new to site

hi l am 77 years young and l was diagnosed originally in 2022 with Gait Ignition failure ( eg freezing and falling ) a form of Parkinson’s, as condition...

hi l am 77 years young and l was diagnosed originally in 2022 with Gait Ignition...

Grandmadippy

•2 months ago

13 Replies

anxiety

everything i do reminds me of what i could do which adds to my anxiety, i worked as a cbt therapist so its difficult for me to accept i have this diagnosis of...

everything i do reminds me of what i could do which adds to my anxiety, i worked...

Grandells

•2 months ago

1 Reply

RSV Vaccination

My husband has CBD and has just had a message from the surgey to book an RSV Vaccination. He often has a bad reaction to medication and vaccines - especially...

My husband has CBD and has just had a message from the surgey to book an RSV Vac...

SunriseLegend

•2 months ago

5 Replies

Home adaptations

Hi, My Dad has PSP and I’m wondering if others can give advice on the most suitable adaptions to the home (particualry bathroom) for the months ahead please....

Hi, My Dad has PSP and I’m wondering if others can give advice on the most sui...

Woodstock80

•2 months ago

25 Replies

Heartbroken 😢

My darling Mum took her last breath last night. We’re heartbroken but happy that she is free from PSP. This community has been amazing and I have been...

My darling Mum took her last breath last night. We’re heartbroken but happy that...

GeorgeMMXVI

•2 months ago

21 Replies

What Should Be The Most Loving tribute to PSP, CBD and MSA Fellows ?

What could be the most loving tribute to PSP, CBD and MSA people who leave this world ? Quotes, eulogies, and stories etc do serve as tributes. However,...

What could be the most loving tribute to PSP, CBD and MSA people who leave th...

PineEater

•2 months ago

2 Replies

CHC - offer of some guidance if required

** UPDATE ** * I don't know how to share the documents so I will add some helpful documents I created at the bottom of this post. There is so much experience...

** UPDATE ** * I don't know how to share the documents so I will add some helpf...

Harshacceptance

•2 months ago

26 Replies

Home or Nursing Hime

hello, my husband has PSP , he was diagnosed 3 years ago , but had a lot of symptoms before . He’s now at the stage where his mobility is so poor. but he...

hello, my husband has PSP , he was diagnosed 3 years ago , but had a lot of symp...

bladesmad

•2 months ago

14 Replies

psp and sitting in chair sliding over to right side

My husband Jim is about 5 years in with psp has nearly lost all speech has no balance on his own he sits in his recliner nearly all day and we have carers in 4...

My husband Jim is about 5 years in with psp has nearly lost all speech has no ba...

Morag1952

•2 months ago

6 Replies

Hand or wrist splint

My husband has CBD and it is quite late stage now. His hands grip tightly and are hurting him. He has botox every three months but is not due another dose any...

My husband has CBD and it is quite late stage now. His hands grip tightly and ar...

SunriseLegend

•2 months ago

6 Replies

psp help

hello, my husband is a young 79 who has been diagnosed with psp last year, how ever he’s had this for at least three years prior but was misdiagnosed with...

hello, my husband is a young 79 who has been diagnosed with psp last year, how e...

Lillian44

•2 months ago

10 Replies

sleeping longer

My husband was diagnosed with PSP 3 years ago, but probably suffered longer. He is now sleeping much more each day & doesn’t communicate with me very much,...

My husband was diagnosed with PSP 3 years ago, but probably suffered longer. He...

HowDoglover

•2 months ago

14 Replies

Fungal Rash

Several months ago my husband developed a fungal rash in the groin area. He saw the Practice Nurse at our surgery and was told it's Jock Itch. Dakarin cream...

Several months ago my husband developed a fungal rash in the groin area. He saw ...

Oumarusk

•2 months ago

11 Replies

45 year old partner could these be CBD symptoms? no sleep, leaning over slumping, tremors, burping, hiccups, irritable?

Hi, I came across this site by chance after typing in some strange symptoms I’ve noticed in my male partner who’s only 45. He’s had no end of seemingly...

Hi, I came across this site by chance after typing in some strange symptoms I’ve...

Mogsygirl

•2 months ago

14 Replies

Mum's mobility

So this week has not been great! Mum has been told that the carer's are now having to hoist her and she is devastated by this. She feels that this is the end...

So this week has not been great! Mum has been told that the carer's are now havi...

Pudsey123

•2 months ago

12 Replies

Diet and PSP-CBD

https://l.facebook.com/l.php?u=https%3A%2F%2Fpspawareness.com%2Fblogs%2Fpsp-q-a%2Fdiet-and-nutrition-for-atypical-parkinsonism-best-practices-for-health-and-wel

https://l.facebook.com/l.php?u=https%3A%2F%2Fpspawareness.com%2Fblogs%2Fpsp-q-a%...

daddyt

•2 months ago

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Biting on the spoon whilst being fed

My wife has started biting down hard on the spoon when being fed. I am concerned she will damage her teeth. She doesn't do it all the time but I never know...

My wife has started biting down hard on the spoon when being fed. I am concerned...

Wombatz

•2 months ago

4 Replies

Help with advice

Hello there Whilst our PSP journey ended some five years ago I still keep in touch. When you post a query, it would be most helpful if you could put the...

Hello there Whilst our PSP journey ended some five years ago I still keep in tou...

AnneandChris

•2 months ago

5 Replies

Agitation and insomnia

Hi all. Hoping for some advice regarding my Dad who was diagnosed with PSP about 18 months ago. His condition has declined rapidly after a few spells in...

Hi all. Hoping for some advice regarding my Dad who was diagnosed with PSP about...

Leither1

•2 months ago

5 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for February 2025

repeated chest infections

my friend

freezing

Voice support

diagnosis cbd and psp

hoping for a diagnosis today, wish us luck x

Diary of home adaptations

At Peace 💔

tips for voice problem

Finding Slivers of Joy every day ...

Finding Slivers of Joy each day ...

hiya new to site

anxiety

RSV Vaccination

Home adaptations

Heartbroken 😢

What Should Be The Most Loving tribute to PSP, CBD and MSA Fellows ?

CHC - offer of some guidance if required

Home or Nursing Hime

psp and sitting in chair sliding over to right side

Hand or wrist splint

psp help

sleeping longer

Fungal Rash

45 year old partner could these be CBD symptoms? no sleep, leaning over slumping, tremors, burping, hiccups, irritable?

Mum's mobility

Diet and PSP-CBD

Biting on the spoon whilst being fed

Help with advice

Agitation and insomnia

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive